Hello,

I am new to the Neurotalk community and am looking forward to hearing of the experiences and researches of other PD patients. For two years since diagnosis, I have been pursuing treatment first with the intention of avoiding medication, then once started (selegiline and sinemet) to slow the progression of symptoms.

i continue with EDTA chelation, extensive nutritional supplementation, IV glutathione and have previously used hyperbaric oxygen, accupuncture, oral chelation and IV antioxidant supplementation. I have just started low dose naltrexone therapy(4.5 mg. q.d.).

The lines of research are interesting and exciting, but I have yet to experiencee or even read of any medical services for PD that are anything but palliative.

I look forward to communicating with others involved in investigating and living with PD.

Arthur

hello arthur and welcome. I hope you find what you are looking for. and good luck with the PD

I have the personal acquaintance of 2 men who have begun LDN therapy for PD Jan 2007. Both report that they were able to reduce their other medications, and have better energy, but this is still early.

We at least have the interest of NIH, and Dr Hong will be attending the NIH meeting on LDN April 20th.

From http://ldninfo.org/ldn_latest_news.htm
Research on Neurodegeneration Suggests a Protective Naltrexone Role. J.S. Hong, Ph.D., head of the Neuropharmacology Section of the Laboratory of Pharmacology and Chemistry at the National Institute of Environmental Health Sciences (NIEHS), finds that "morphinan" drugs, including naltrexone and naloxone, are able to reduce inflammatory reactions in microglia brain cells in animal studies. Such inflammation is believed to be central to the progressive neurodegenerative effects seen in disorders such as Parkinson’s disease and Alzheimer’s disease. Hong’s report, summarizing the role of microglia in inflammation-related neurodegeneration and the potential of therapy using morphinans, will appear in a January 2007 issue of Nature Reviews Neuroscience.

My experience is using LDN for MS, and a trial has now started at UCSF to investigate its effectiveness for MS. Details at http://LDNers.org
SammyJo

Hi Arthur, I was dianosed with PD 6 years ago @ age 44. It has also been my goal to stay away from medication as long as I can. So far I still don't take any. I have tried many of the things you have: acupuncture, i.v. chelation, hyperbaric chamber, infrared saunas, upper cervical chiropractic, anti inflammatory diet, tincutres. Although none have resulted in a noticeable reduction in symptoms, I believe all have contributed to slowing the progress.

The one thing that seems to make me feel better and keeps me on an even keel is vigorous exercise. I've gone from 2 days a week to 6 days a week and it really helps. Lots of strength training and also anaerobic/right-left type exercises. Just trying to stay as healthy as possible until there are better therapies available.