Welcome to Neuro Talk. You found a good site, and there are lots of compassionate people here as well. I also have PN in my left foot and calf. Maybe RSD I really don't know yet. My doctor put me on the same B12 as you, and told me that is one of the best things I can do. She is a physiosist, and did give me some other suppliments too. I am sorry you suffer with this. There are medications that help. I don't know if I would have a spinal tap for this or not. It would take a lot of convincing for me anyway. I don't go quietly to invasive proceedures very well. Keep posting to the PN forum with any of your concerns. Ginnie

hi i also have neuropathy and rls. when my blood work came back i had a vit D level of 9 no kidding.any way one more week of the 50000u of vit D2. I tried B12 before my blood work came back and it kicked my RLS into high gear. I was so bad i had it all day which i had not had in a few years, went off b12 still have days of all day RLS. Will be retested on the vit D in 2 weeks and will continue wit 2000 u per day. Maybe it wont be so low this time.
Brenda