I am new here and have had this 3 and 1/2 years. All my friends have gone by the wayside because they can still do all the stuff I cannot do anymore. Pain is unbearable at times and that is being nice. Doctors are oblivious to what I have, and look at me as a drug abuser. So all in all life sucks, except for my family.

Hi! I to have RSD. It is definitely difficult. I have had problems with the doctors as well: it is not fun especially not being able to do all the things you used to. I am trying to find a new doctor myself. Have you tried to find an RSD specialist?

Welcome to NT! You should find some great support here. I am sorry for what you are going through, it is tough to deal with!

I can relate to most of what you say. Since I can't tolerate anything, they know I am not looking for drugs and thankfully don't look at me that way. But I have a friend with different pain issues and she runs into that. Now, they just look at me like they don't know what to do with me. I have had RSD for 20 or 21 years now.

I have the problem with drs too, been through soooo many and it took a while to find my current PM dr but now he is at the stage of not knowing what to do with me. I have two spinal cord stimulators that help, but I have RSD in places they don't reach. With my intolerances and allergies, they are at a loss of what to do and I suffer for it.

Most of my friends are too busy for me, I can no longer do those fun things I used to do with them either. Only a few of them get it and seem to care. I am most thankful for my husband, he is a true gift and I don't know where I would be if I didn't have him.

I am still working, but it takes all I have to get through the work day and I am not sure how much longer I can handle it. The stimulators have helped me continue this long. I am also finding some help in dealing with this through counseling, it really does help my mind at times.

I hope you can find the help and support you need, because it really does suck!
Nanc

I am sorry you suffer from RSD. You find out who your friends are when you hurt. You will find some good friends here, that won't diss you just because you hurt. I too diagnosed just a few months ago. Have a new kind of doc. if you are interested and a rub in cream that works. Hurts to rub in, but helps. ginnie

chrisandrob4ever,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on to the following forum for some fellow members to assist you:

Reflex Sympathetic Dystrophy
http://neurotalk.psychcentral.com/forum21.html

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene