Hi there.
I'm a mess. My fmla is about to run out any day. My neuro is extremely reluctant to diagnose what I believe is cervical, oromandibular and right-sided hemispherical dystonia. I can't drive, have difficulty walking very far, (it's the first time I have been thankful for a small house). I usually do not have the use of my last 2 fingers on my right hand. When my jaw acts up, it's hard to talk or be understood. I feel like I'm dragging my family down. My poor sweet hubby is stressed and doing almost all the housework. He's worried about money, and I'm worried about his health, too.
Mr friends have stopped calling, I don't think they know what to say. Does anyone out there understand?

I first want to welcome you to Neuro Talk We have many forums where there are loving and kind folks all around. I have been in a similar situation as you and felt so very alone. We do have a website for Headache and Depression. I have attached a link for the headache website....
http://neurotalk.psychcentral.com/forum32.html
My hope is that you might find a good listening ear. I will do what I can to support you! You take care!!

ionaskye,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Sad to hear what you are going through.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Thanks, Tamiloo. I watched your skiing link, It looked terrifying! I tried skiing once when I was a teenager. After several trips down the bunny slope on my face and being passed by 3 year olds without poles, I threw in the towel.

Thank you for being so welcoming. I often don't call my old friends anymore few a couple of reasons, 1) I'm tired of always being the one to call them and 2) I don't want to be the whiny bad news bear. I don't know how to respond to this, I suppose I can't be too upset that they don't know how.
I'm trying to appear "up" or at least "upp-ish" when my hubby is home. The last thing he needs to worry about now is about how depressed I really am. I haven't even mentioned all the stuff going on with our kids; it feels like the world is falling apart.
ps- You can't sleep either?

Well for years mt DH work night shift so I got use to staying up late. Now he he is on the day shift it hard to get back the other way. Seems I am able better to work at night instead of days. My thoughts and prayers are with you.

Darlene

It's a terrible phase to be in, not having found ways to live with the new "diminished", "impaired", agonizing reality, and still having fresh memories of the old, good, healthy life. I feel that it's important to take a little time to grieve what has happened to you, it is very real.

Also, it's important to focus on more positive things as much as you can! The more you focus on the troubles you are having, the larger they appear, and the more they grow. Call your friends when you have some good news, when you are in good spirits, let some of them go. You will have a different life from now on, but that doesn't mean your spirit must fall into disrepair! "Remember what happiness there may be in silence." (Desiderata - you can read it online, it is a gentle reminder of how to live with obstacles.)

Best Wishes
StormE1

Yes I totally understand where you are coming from.