[91hrt transplant]

Hi,
My name is Jack and this is the first time I've ever joined a group like this but I hope to get more information about my problem. I hope others will be able to tell me, or I can read what is already written, about their experience and where they received treatment. Anyway, I received a heart transplant 22 year ago and the heart is still working fine for which I'm for every thankful to the donor, donor family, and to our Lord God who has always watched over me. But what I'm looking for help with, is a Syringomyelia I first had 5 years ago. At that time I had surgery and a shunt was put in to drain it, It plugged about 2 years latter and a larger one was put it in which lasted another 2.5 years. That lasted another year or so and it also plugged. Now I am facing another surgery for which my neurosurgeon suggested I seek another opinion. So I'm looking for anyone who is experienced with a syrinx and do they have recommendations of any doctors and clinics I can check with?
I'm sorry I rambled on about my self, I normally don't do that. But thank you all for your input into this site and sharing your experiences.
Jack