I understand getting the help one needs to get a dx is so frustrating I am in similar situation and its starting to wear me out, if I did not have a few good friends that keep listening to my rants and encouraging me to stay positive, I would just give up.

I am going to keep trying. I have this gut feeling I know what's wrong with me but I refuse to even take it into consideration. I'm just hoping in time i will start feeling like myself again.

I'd have to look up how many years it's been (~10 I think) but my doc advised against surgery, and told me that in time, the body does heal itself. I think this has happened, but with DDD, it goes both ways; some things have gotten better, while others have gotten worse. Last time I saw him, he suggested getting updated imaging to see where I am/what's going on. I just haven't gotten around to it.

Doc

Hi Mag,
Im new to this site and Im sorry I don't have any answers for you.
Except-
That deep down inside we all have incredible strength that we don't know about. It's so hard to "pigeon hole" your pain when it's right there in your face 24/7. But when we draw on that strength and look after our emotional pain which comes with physical pain then sometimes we can breathe easier and if only for a short while be able to focus on something else other than the horrendous pain we know so well. I hope and pray that you get some answers and relief as quickly as possible. Be good to you

My mother complained to her doctor about her leg pain and was dismissed over and over. Finally I went with her to her doc and DEMANDED that he listen to her complaint. He finally ordered tests that showed she had severe claudication in her legs due to a greater than 90% blockage of blood flow from the aorta to the femoral branches.

It took 20 years for me to get a dx for my nerve pain.

I now know that we have to be our own advocate and also demand to be heard and not simply dismissed.

Doc