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Old 08-13-2013, 06:55 AM #1
Bardsgr Bardsgr is offline
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Join Date: Aug 2013
Location: Perth WA Australia
Posts: 2
10 yr Member
Bardsgr Bardsgr is offline
New Member
 
Join Date: Aug 2013
Location: Perth WA Australia
Posts: 2
10 yr Member
Default Ruro72

Hi from Western Australia. I am looking for someone who has Lems. I have been diagnosed now for 6 months . I have Infusions of Ivig two days every month and did not respond to mestinon at all well. Did much better on 3 4 Dap. Progressed to Imuran which made me quite ill and am now commencing an alternate drug Mycophenolate Mofetil. Early days yet. I know there are lots of support groups for. Myasthenic Gravas, but not Lems. Hope to hear from someone.
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