[Jesscosmo92]

I am very sorry but I dont know how to make a new thread, how did you post this?? I have a lot of questions I need to ask, but I dont know how to work the site

[Jomar]

I copied your post to this thread for you..

Check our FAQs section for site use help-
http://neurotalk.psychcentral.com/faq.php

[Jesscosmo92]

Thank you very very much I really appreciate it, xo

[Darlene]

Jesscosmo92,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Jesscosmo92]

Im really nervous that it could be something like ALS, considering how fast it came, however I am not progressing, atleast i dont feel like I am, I can walk and everything just fine, I just get EXAUSTED when I work out or excercise, but i thinl it might be related to my anemia

[Jesscosmo92]

Hello everyone, I am new to the community, and I am pretty familiar with a lot of illnesses, however I am rather stuck on this new weird symptom that is dooming me a lot lately..... it started that I was having weird restless sensations all over my body, whis being on any anti depressant, being I needed it I continued on taking it, just before discontinuing it i was dealing with a lot of stress at my job as a stylist and put in my two weeks notice.... I woke up one day with this weird CRAMP like sensation under my tongue, and it got so bad i started to gag, like a lot..... so I went to the ER and the said it was Tardive dyskinesia, because of minor quivering in my tongue and sent me home with Cogentin, an anti parkinsons medication... I woke up the next day frozen in my bed unable to move, i was so sick and my tongue was cramped up so bad i began gagging, and couldnt talk without gagging, and i went back to the er, by ambulance, they took me off cogentin gave me anti anxiety ATIVAN and ondansetron to stop possible nausea and vomiting... i saw my regular doctor and she told me it was definitely tardive dyskinesia and kept me on ativan, and it went away for like a week, and here im about to start a new job a month later and my symptoms are back, being worse at night. in detail th symptoms are

Cramping under tongue
cramping in jaw
jawpain
I have been clenching my teeth from nerves (tooth pain)
tongue stiffness
tongue srawlypasms
slight faciculations in my tongue
a pain in my salivary gland, almost as if someone is pushing under my chin on my salivary gland with their finger really hard
a feeling like as if im going to gag, but not nauseous
I am not having trouble swallowing
crawly feeling in a few spots in my back, ive had this awhile


I am anemic, not b12, but iron deficient.
Anorexia for many years *stable now*
Vitamin D defficient
calcium defficient

Havent started new vitamins yet



No doctor knows what this is, I see a neurologist in late October and a new psychiatrist next week, im hoping they can get me into the neuro sooner, I am very scared that I will live with this forever, or it will get worse, or it could be ALS... someone please sign some light on me. Thank you everyone

[terig]

hi jesscosmo....I hope this message reaches you..i am new to this site....I have had all of your symptoms, and its been progressively worse, now I am walking with a walker outside and a can in and around my condo...I have been seeing a neurologist since nov. 2012 and am going for a second opinion this November, I went for an assement at a leading pain clinic in our area and her diagnosis is 'hypersensitivy of the central nervous system' I think the neurologist said chronic pain syndrome..however no one is addressing the leg weakness, breathless ness , cramping and spasms....I am going nuts...and some times I feel just live with it..if it gets worse ...I'LL SHOW THEM! BUT.. then I will probably be in even worse shape....I , at this moment give up too! GOOD LUCK!

Originally Posted by Jesscosmo92

Hello everyone, I am new to the community, and I am pretty familiar with a lot of illnesses, however I am rather stuck on this new weird symptom that is dooming me a lot lately..... it started that I was having weird restless sensations all over my body, whis being on any anti depressant, being I needed it I continued on taking it, just before discontinuing it i was dealing with a lot of stress at my job as a stylist and put in my two weeks notice.... I woke up one day with this weird CRAMP like sensation under my tongue, and it got so bad i started to gag, like a lot..... so I went to the ER and the said it was Tardive dyskinesia, because of minor quivering in my tongue and sent me home with Cogentin, an anti parkinsons medication... I woke up the next day frozen in my bed unable to move, i was so sick and my tongue was cramped up so bad i began gagging, and couldnt talk without gagging, and i went back to the er, by ambulance, they took me off cogentin gave me anti anxiety ATIVAN and ondansetron to stop possible nausea and vomiting... i saw my regular doctor and she told me it was definitely tardive dyskinesia and kept me on ativan, and it went away for like a week, and here im about to start a new job a month later and my symptoms are back, being worse at night. in detail th symptoms are

Cramping under tongue
cramping in jaw
jawpain
I have been clenching my teeth from nerves (tooth pain)
tongue stiffness
tongue srawlypasms
slight faciculations in my tongue
a pain in my salivary gland, almost as if someone is pushing under my chin on my salivary gland with their finger really hard
a feeling like as if im going to gag, but not nauseous
I am not having trouble swallowing
crawly feeling in a few spots in my back, ive had this awhile


I am anemic, not b12, but iron deficient.
Anorexia for many years *stable now*
Vitamin D defficient
calcium defficient

Havent started new vitamins yet



No doctor knows what this is, I see a neurologist in late October and a new psychiatrist next week, im hoping they can get me into the neuro sooner, I am very scared that I will live with this forever, or it will get worse, or it could be ALS... someone please sign some light on me. Thank you everyone

[Jesscosmo92]

Originally Posted by terig

hi jesscosmo....I hope this message reaches you..i am new to this site....I have had all of your symptoms, and its been progressively worse, now I am walking with a walker outside and a can in and around my condo...I have been seeing a neurologist since nov. 2012 and am going for a second opinion this November, I went for an assement at a leading pain clinic in our area and her diagnosis is 'hypersensitivy of the central nervous system' I think the neurologist said chronic pain syndrome..however no one is addressing the leg weakness, breathless ness , cramping and spasms....I am going nuts...and some times I feel just live with it..if it gets worse ...I'LL SHOW THEM! BUT.. then I will probably be in even worse shape....I , at this moment give up too! GOOD LUCK!

Terig, that sounds horrible.... what do you think it could be???? Im walking totally fine though.. thats the thing about ALS.. is they lose their ability to walk, and have fasiculations and cramps all over the body.... I really hope they dont tell you its something bad, prayers !


When did your symptoms start??? did it start in one area and spread?

[Kitty]

Just a suggestion since you're not sure what condition or conditions you're dealing with.....the link I've posted here is for the General Health Conditions and Rare Disorders Forum. You might try posting a thread on that forum. You might get more responses there.

http://neurotalk.psychcentral.com/forum2.html

[Jesscosmo92]

Did you tag me into those forums?? cause when i went to them this thread showed up