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11-27-2013, 02:18 AM | #1 | ||
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New Member
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Hoping to find people who know more about what this is like. My spouse and family are very supportive. I was fortunate that as soon as the headaches started, I assumed a vision issue because of some intermittent double vision and I was diagnosed early.
I just started Acetazolamide. My concern is that I've heard the condition can come back after treatment and pregnancy can be a trigger. I would like to have children, so hoping to hear from people with this diagnosis who later had children and what issues (if any) came up. |
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"Thanks for this!" says: | Cyclowolf (11-27-2013) |
11-27-2013, 07:46 PM | #2 | |||
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To NeuroTalk!
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Cyclowolf . Sometimes A Good Howl Is All You Need! |
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11-28-2013, 02:19 AM | #3 | |||
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Legendary
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PTC_2013 It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. Darlene
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. "Life without God is like an unsharpened pencil -- it has no point.
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11-29-2013, 02:50 AM | #4 | ||
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** There are many others. I am from Germany. We just founded an association for this disease to increase awareness, competence and research on this topic. Keep your head up Andreas |
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03-05-2014, 01:32 AM | #5 | |||
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