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New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
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#1 | ||
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New Member
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Hoping to find people who know more about what this is like. My spouse and family are very supportive. I was fortunate that as soon as the headaches started, I assumed a vision issue because of some intermittent double vision and I was diagnosed early.
I just started Acetazolamide. My concern is that I've heard the condition can come back after treatment and pregnancy can be a trigger. I would like to have children, so hoping to hear from people with this diagnosis who later had children and what issues (if any) came up. |
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"Thanks for this!" says: | Cyclowolf (11-27-2013) |
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Cyclowolf . Sometimes A Good Howl Is All You Need! |
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#3 | |||
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Legendary
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PTC_2013 ![]() Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]() Darlene ![]()
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. "Life without God is like an unsharpened pencil -- it has no point.
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#4 | ||
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Newly Joined
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** There are many others. I am from Germany. We just founded an association for this disease to increase awareness, competence and research on this topic. Keep your head up Andreas |
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Junior Member
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