My 14 year old daughter has recently been diagonosed with erythromyalgia.
Last year she lost her ability to walk at a normal gait.
She has burning pain on the bottom of both of her feet.
Her fist diagnosis at UCSF Children's was CD (Conversion Disorder: a Psychosomatic disorder), because they (UCSF) did not take the time to research. This drove us crazy trying to figure out what the "stressor" made her lose the ability to put weight on the soles of her feet.
Next we went to Shriner's in Sacramento who had the quick diagnosis of RSD. They said there is no treatment and it will eventually leave her body.
I would not settle for this diagnosis because she had the burning pain on both of her feet and the only pain relief she recieved was from soaking her feet in cold water.
She is Now at Lucile Packard children's hospital in Stanford with the Pain Clinic team. They diagnosed her with Erythromyalgia. She has been there for three weeks with an epidural catheter.
Any one out there that has experienced this rare disorder?
Thank You.