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Old 02-01-2014, 05:58 PM #1
jeff reid jeff reid is offline
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Join Date: Feb 2014
Posts: 4
10 yr Member
jeff reid jeff reid is offline
New Member
 
Join Date: Feb 2014
Posts: 4
10 yr Member
Default just got diagnosed w/small fiber neuropathy

Hello out there,

I was diagnosed 4 years ago for peripheral neuropathy. My doc told me there was nothing you could do about it as it is simply idiopathic. However, my health deteriorated rapidly the last 8 months and I prodded my doc into a referal to find a cause. I have yet to review things with the neurologist but his assistant told me I have been diagnosed with small fiber neuropathy, hashimotos, porphyria and they are trying to get me into a mitochondrial clinic in D.C.

I am 57 but until 8 months ago I was going 5 sets of tennis guys in their 20's and winning. No stomach, gray hair, strong legs and big arms. I felt crappy but I could fool anybody. See me now and you might ask if I need an ambulance.

I know I should just wait until my neurologist returns but symptoms are accelerating FAST and my thinking is jumbled. For the first time in my life I'm scared and I don't like being out of control. Over reacting with my children is probably the worst thing actually - forget the pain - that really hurts.

Can anyone shed some light for me. I really want to have a sit down with my family but not until I know the game plan.

Thank you for your time, jeff
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