[jammyh]

Hi. New to this forum stuff so hope you can keep me straight. Just want some ideas if poss as to what I could be dealing with. 8 mths ago I started feeling off balance - shifting to the left. Had ears checked - all clear. Then my left leg suddenly became flacid and would not support me. Rest recovered strength but I cannot sustain it. Over time, other leg has since gone as well and I can am now totally housebound. I have an ataxic (I think) gait and need to hold onto walls for support round the home. I cannot walk outside without aids, and then only very short distances before both legs stop working. It is exhausting. I have problems with my left eye now as well as dry eyes and get repeated eye infections. Nero did mri of brain and c spine (no contrast as she said they are pointless)- clear. I had a nerve conduction study and emg 7 mths ago - done by a student on my right leg which did not cause problems at that time. I was told it made no difference where the study was done. He did my right ankle and right shoulder only.. Neuro physio suspended treatments until she has a diagnosis to work with as 6 months on I had deteriorated rather than improved. I am told I show a positive babinski reflex and pronator drift (whatever they are). The Neuro says it is not neurological because my mri was clear and just keeps telling me it is my body reacting to having had cancer 15 yrs ago. My doc is not happy and referred me to another neuro out of my area, but the waiting list is months. Does anyone have any ideas as to what is going on and/or what I can do to get back on my feet - literally. I just want to get back to work, or even out of the house would be good.

Might be worth mentioning, I have no pain thank goodness, but I do get very breathless.
hank you for any advice or suggestions.