I found this forum while trolling the net for info and I'm very glad I did. I'm hoping to find other people who understand what I'm going through. My ENT recently sent me for an MRI because I've been suffering from a constant headache for a few months and found that I have a 5mm tonsillar ectopia. I immediatly hit up google to figure out what the heck that meant and ran across info on chiari malformation. After reading as much as my adled brain could take I realised all my weird little quirks I thought I had were really symptoms. All this time I believed I was just another dippy clutz. I haven't been diagnosed with the chiari but I do go see the neurologist this coming tuesday. I am extremely nervous about this. I'm terrified he won't believe me about the other symptoms because I was only referred for the headaches. I did hunt down and print out a chiari questionnaire that I filled out and intend to take with me, but is there anything else I can do to help this along? I have read a lot of chiarian stories and many people said it is extremely difficult to get diagnosed. I could use some help here. I'm a nervous wreck.

Welcome Mrylou.

Mrylou,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene