There is certainly something you can do:

Watch this video:

https://www.youtube.com/watch?v=BvEizypoyO0

If your doctors won't test you, then take the B12 orally....
5mg each morning on an empty stomach. Methylcobalamin is best but you can try cyano if you can't find methyl.

There is no toxicity for this, shots are not necessary, and if you do this for 3 months you may find that you improve. But it would be best to know your B12 level first to verify your response.

Some people have to go to up to 20 doctors to get a proper diagnosis of this. The video shows that well. This video was made by a nurse and her doctor husband.

Alex, I can tell you that by simply having a clear MRI does not rule out something such as Multiple Sclerosis. You can have a clear MRI but you can still have Multiple Sclerosis. It makes getting diagnosed more difficult but not impossible.

At the time of my diagnosis the MRI was clear.

Hang in there and have patience.

Alex,
With the NHS you have the choice to go to any Hospital you choose, at any Trust. If you feel you are being given sub-par treatment by anyone call that Hospital, or NHS111 (this is for UK), and ask to speak to the PALS (Patient Advice and Liason) Office. You can talk through your concerns, or put in a formal complaint.
Don't let your age put you off, and don't stop fighting for an answer to the cause of your condition. Above all, don't get depressed - come here and rage against an unjust World - there is always someone to listen.
Don't forget to get your bloods and B12 levels checked as MrsD advises.

Dave.

ill find out what my b12 is. does it get tested when you have a blood test done.
I had a low level d , but I take calcium with added vit D and b12 already.
I have a normal diet , fish or meat with either veg and green beans , sweet potato, or salad.
ill phone the doc and see what the b12 is on monday

okay ill have a phone call with pals on Monday. I don't really no where would be best. my neurologist sent me to London thinking they would sort me out there but they don't seem interested.
I had the mri done yday so ill see what that says but if theres nothing on there then they wont do any other tests/
oh and I did have a electric muscle test but that was also normal

The amount of D in a calcium tablet is very small.

You need 1000IU for every 10 pts to raise. If you know your result from that test, you can figure it out. Use only D3. Say your level is 20, then you would use 3000IU to get to the goal of 50.

The B12 has be taken on an empty stomach. 1000mcg (1mg) minimum will be absorbed to the tune of 13mcg. Anything less than 1000mcg dose is not very useful to raise it.

And no, the B12 test is ordered separately by most labs. It is not included in a chem panel.

If you are low, and you delay too long, you may not regain the functions you lost or are losing. (this is called combined degeneration of the spinal cord).

Hi Alex,

I am so sorry to hear what you are going through! Kind of shocking to me that your work-up isn't being fast tracked. Sudden loss of limb use is usually considered an emergency. I agree with the lumbar puncture question. You definitely need every possibility explored, infectious included. If it's possible to switch doctors then do! Don't accept someone who is going to blow you off, that is a set up for failure and frustration.

I know this is hard but you must find a way to get through. Don't give up on yourself. I spent months not knowing if I would ever walk again (I did by the way) dragging myself backwards on my arms to the bathroom and hoisted up onto the toilet from the floor. Crab "walked" backwards on my arms up the stairs too. It was a serious drag, literally, but I developed some astounding triceps during that time! Try to hold on, you never know what each day will bring and one of them will bring an opportunity for healing. Do whatever you can to keep your strength. I spent a lot of time in the pool when I was not able to do anything else and it really helped with aches, pains and maintaining some muscle. I used a buoyancy belt since I couldn't really kick. If there's some kind of community pool you can get to even just a couple times a week it will give you a goal to focus on and place to feel you are accomplishing something.

Hang on Alex! We are all rooting for you and I am Sending Healing Love,
Littlepaw