Hi.....introduce myself it says.....38 yr old female presently stressed about my future. My brain thinks I'm fine...but I'm not. Hard to swallow.

-2-3 years ago I had 2 spirts of neuropathy. One for a week...one for 2 months. This time it's stuck around.

1.5 years w undiagnosed neuropathy. 16 doctors.. From a chiropractic to ms specialist.
Tests from mris from my head to butt, 6 xrays, blood drawn 4x, 2 ultra sounds on my legs 1 of my girl parts, 2 emgs...one normal one saying automatic and sensory neuropathy. 1 skin sample one 2 samples taken showed nothing. (Thank goodness for my Obama Care insurance!)
-every doctor said I can't help u u need to go to pain management.

My symptoms just showed up one morning... Pins and needles primarily in my right but still in both...dead spot on bottom right ankle. Since then they have changed to:no...both of my legs up to my hips, discoloration ( blochy Red)dead spots are growing on right and left, spots in my vision, blurred vision while reading off and on, troubles swallowing my meds, palpataions, sweats, joint pain, and I do believe the burning is spreading.

Medications- started w prozac, gsbapentin and 800 ibu. Since then I've been on: lyrica, Maxed out the amount of gsbapentin, 2 different pain lotions,percocet, and 2 different sample for diabetic nervd pain, xanx. Presently: in pain management w a doctor who cares. Cymbolta, amnatriptalin, xanx,nucrnta,and er oxcycotin.

.. After all this time I'm referred to a muscle nerve neurologist by my pain doctor. A physical is all he did...that translated to small fibet neuropathy and him being very aggravated w my old neurologist. Now I have to wait(again) for all my records fro. One neurologist to the new one so he can see what tezts and results have happened already. I'm totally expecting to do multiple test in September.

Work...Ive been a server for years...not any longer. My boss said my booboo makes me unreliable. I have a hard time standing or walking for longer the a cple hours.. The same w sitting. . So now I roll silver and make things and sell them at the flea market. Have applied for disability... And now have a lawyer.

Lastly in here...on this site...for support and questions. Depression can get so bad its crazy... I try to think of s future but cell like I don't know what is going to happen from here on. Am I gonna be blind? In a wheel chair? I'm just lost. Getting a diagnosis dint really help anything. I want a test saying you have "whatever" and if we try and fix that then we can fix ur neuropathy.

Yup....that's my introduction.

Welcome bangels.

Hi and welcome here. I don't have a history with PN per se, but here due to Femoral Nerve Damage from a hip replacement...was looking for support with my issue and came upon this group. I have a friend with a long history of neuropathy and since she takes grape seed extract now for almost 5 yrs, she has a lot of improvement. She got off years of neurontin. Since she is having good benefits, she has her adult daughter on grape seed ex now. That's a testiment when we get our friends and loved ones on something that is helping us.

I'm entering 20 yrs on grape seed extract this Sept. Yes, it's been a type of miracle in my life in many ways.... I talk about it a lot here, and know some get tired of hearing me, but it's hard not to spread good words.

I post a lot in the Vits/Supp area here and make some comments in the PN group.

I've found two supps that I now take for the nerve damage I'm dealing with and going into month 2 hardly feeling any burn/tingle on my thigh. It's all still numb, not the burning. These are Inosine and Sphingolin. You can do a search, and I 've posted about these here with my experience. Hope you can find some relief and as we know we all have our issues and do our attempt at healings in our ways. My way is as alternative/holistic as I know and I'm forever seeking out help and it comes to me.

Hello bangels,
Welcome to the NeuroTalk Support Groups.

There are a number of forums that you may like to check out.

Peripheral Neuropathy Forum

Depression Forum
Chronic Pain Forum
Medications Forum
Social Security Disability Forum

At the top of most of the forums here you'll find the "Sticky" threads. They contain useful websites and other information pertaining to the specific conditions.

I am sorry for what you are dealing with right now and I am sure that you're able to find information and support from the members here.

take care.

Hi bangels,

Lara has provided you with the important Links you need, and you will find a warm welcome and many caring Members of our Community across all our Forums. In particular, you will find me on Chronic Pain, PN and extremely importantly, Depression Forums.

None of us can face this Journey alone, that is why our Members are important to each other. We can provide the understanding that those on the Outside - Normies - even Loved Ones, cannot give. There is also the opportunity to vent here to sympathetic ears, without upsetting people in the Real World. Our families and friends are usually wonderfully patient, but there are limits to what they 'get' and sometimes they need a break from us.

I am very verbal in discussing the link between Depression and increased pain, and also for receiving the appropriate treatment for the condition. Some need Therapy, others ADs. I have Depressive Personality Disorder, so I am constantly Clinically, Severely Depressed, and have had bad experiences with Psychologists so I go the meds (Mirtazapine) route, along with the support I get here. If you would like to talk, follow the Link and start a new Thread.

Dave.

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi bengals - I just discovered some of your posts and was just curious how your symptoms started/ progressed over the years- I have similar sx that just started. Also how did you finally get answers/ diagnosis- what tests did you have done? And what treatments have worked for you?

Also I noticed you were on a lot of drugs. I don't know the amount and time you took them but I have seen on other forums that people taking some of the meds you were on (particularly the benzos) have caused neuropathy/ parasthesia- have u looked into that possibility?