Hi my name is Joanna, I am 38 years old. Almost 9 years ago I had a craniotomy performed for a tumor that had bled and I had an avm at same site (cerebellum/brain stem area). I did fine for first three years after surgery. It has been after that time I started experiencing headaches and times of confusion, disorientation, vision problems, slurred speech. I have had nerve blocks done, when that didnt work I had my greater occipital nerve on left side of head removed. I have been on numerous antidepressants, anti-seizure medications, high blood pressure medicines. right now I am feeling lost and unsure of what to do with myself. I live in pain and then I have these what I call spells of the other symptoms. It is getting harder to hold down my job and raise my 9 yer old son. If anyone is going through these same symptoms please let me know. I feel like I am going crazy.