[Birdy07]

Hi, I had to bypass the intro real quick because I found this site from a search about myasthenia gravis. I was tested and it came back positive yet the neurologist and physiatrist say my nerves are healthy. I just posted in the MG forum here with my main question.

Well, I know my nerves aren't OK, dispite the medical experts opinions But, I did finally get one good diagnosis which was, I have anti-bodies for Hashimoto's thyroid disease. I've just started on Synthroid. The NP I'm seeing is great, she let me choose the type of RX and how I want to approach my treatment (slowly and surely).

My main complaint was extreme loss of arm muscular endurance. I'm still strong but I can't sustain movement for more than about 30 seconds. Sure I can bench press 30 pound dumbells but I can't spray my birds with a water mister for more than 30 seconds Can't wash my hair or swim without difficulty either. I also have general fatigue and other Hashi symptoms. But, the arm thing was what sent me looking for answers.

I also was born with shallow hip sockets which weren't noticed until I was 50 (4 years ago) I guess I got lucky with that one, many women have problems much younger with hip dysplasia. I'm looking at hip resurfacing sometime in the next couple of years. I found a great surgeon near me. I was considering traveling to India or Belgium where the 'new' procedure (in the US) has been successful for a decade now.

I have really stiff joints too. A chiropractor thought I may have ankylosing spondilitis but no one's checked for that yet. PT helps my neck a lot but I need to keep going back.

So now that I'm through with the peri menopause roller coaster ride, here I am on the other side,waiting to see what surprizes await me!
Enid

Nice site BTW, I need to look around a bit now...

Enid

[watsonsh]

Well Hiya there Birdy07

First off to Neurotalk! I am glad that you found us.

Its funny that Yorkiemom (another great member) and I were just talking about some of the same issues.

I have Hashimotos and am having neuro problems and nerve issues. I also have a goiter. I have developed TOS (thocici outlet syndrome which is a nerve compression problems in my neck which relates to my arms which get heavy when I try to do things. I am absolutely coming to the conclusion that my thryoid might be causing my TOS since it occupies a good deal of space inthat area of the brachial plexus nerves.

My thryoid meds dont seem to be able to manage my condition and when I take em I burn all over and then after a short while on a low dose I seem to get hyperthryoid.

So I have been doing some investigating and recently (this weekend) came across something called thyrotoxic myopathy. Funny thing it says that thyrotoxic myopathy creates weakness in the shoulder and pelvic/hip muscles. It can also affect myelination of the nerves.

Going to ask my doc about it. And am considering having my goiterous thyroid taken out.

Anyway you peaked my interest with your post

Stay and search around. Some great folks here on the forum. We are good listeners!

I hope you are able to find some answers

[AfterMyNap]

Hi, Miss Birdy!

Welcome to NeuroTalk!

I'm sure you'll find a great deal of useful information and many supportive friends here. If you need help with navigating or anything at all, just give us a holler and someone will be along shortly.

[Darlene]

Enid,

Hello and welcome to NeuroTalk. We are a bundle of friends helping each other out with problems. There is a great number here to show comfort and advise as they can to others. Welcome to the gain

Looking forward to seeing you around.

Darlene

[Doody]

Hi Enid and welcome to NeuroTalk. This is a wonderful and caring group of people here.

If you need any help navigating, just let us know.