[DFerguson38]

Hello ALS members! I am new to this site so I'm still trying to manuver through this site. I was dx May 23, 2016 I have Bulbar ALS. My speech started slurring August 2015. Thought it could be the wine, or just being in Leadville, Colo. After a few months it did not get better went to several dr's & finally they referred me to a Neuro Specialist & the testing began & finally 5/2016 dx of ALS was determined. Wow! I'm sure we were all somewhat shocked with dx. So far I am still able to eat normally & drink pretty much w/straw. I have fallen 4 times since dx but mostly from losing my balance. Still go up & down my stairs BR is up stairs. Have difficulty lifting my left leg & to an extent my right leg. My toes on both feet feel numb & stiff but I try to keep stretching them. Dressing myself is quite a challenge & so is bathing at times. I have such little info as to how ALS works. Is it different for women then for men?? I truly would like to hear from a few people who have ALS & what they are experiencing. No doubt this is a disease like no other. I am currently 3 yrs remission on BC stage 2. To say that getting dx of ALS was overwhelming after BC is putting mildly. That's my story in a nutshell. Have a great day!! I have ALS, ALS does not have me😍

[Skeezyks]

Hello DFerguson38: Welcome to NeuroTalk... from the Skeezyks! I'm not knowledgeable with regard to ALS. So I can't be of any help. But I simply wanted to say hello. I hope you find the time you spend here to be of benefit.

[Lara]

Hello DFerguson38,

Welcome to NeuroTalk!

The ALS Forum

is a little quiet, but if you post there I'm sure that the members who do visit will be able to offer you information and support. At the top of the forum threads there is one containing information and other useful websites. I'm not sure if they can be of help but I just wanted to let you know that they were there.

http://www.neurotalk.org/als/258-pal...inks-info.html

take care there.