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09-25-2007, 06:17 PM | #1 | ||
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New Member
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Hi Everyone,
How to make a long story short I have some sort of Neurological disease I was dx with Lupus (SLE) in 1987 with steriod treatments through the years. In 2000 I was taken in ER possible Stroke or MS I've had a 2 band test on Spinal last one was negative... I have been treated with MS meds since 2001 due to blood counts had to discontinue this past March. In 2004 I was dx with Dysautonomia due to lesion on brain stem there is nothing to be done there the Neuro and Mayo said... I just got back from 2wks at Mayo this week they say I dont have MS but Mixed Connective Tissue Lupus, Sjogrens with complications of Dysautonomia. I do have lesions on the brain and the Spine, the Lupus specialist says my Lupus isnt made enough to cause all the CNS thats what the blood work says oh I also take Procrit injections when needed. I have never been so mixed up could use advice support something I dont even know. I was due to start Tyasbri now I'm not. Thank You for this Group, Southern Blessings, Rita |
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09-25-2007, 11:19 PM | #2 | |||
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Co-Administrator
Community Support Team
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Welcome Rita,
I hope you can find some help and ideas as you explore the forums.
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09-26-2007, 12:25 AM | #3 | |||
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Legendary
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Rita,
Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Again welcome, looking forward to seeing you around. Darlene
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09-26-2007, 10:52 AM | #4 | ||
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New Member
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Rita,
This is my first time on the site. I have read a lot of good information. If you live in Indianapolis Indiana I lead a support group for the Sjogren's Foundation. Let me know if I can help. Diana |
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09-27-2007, 09:54 AM | #5 | |||
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Legendary
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Welcome Rita! Wow, you really have alot to deal with. I'm glad your'e here, as there's so much info and good people here to help.
Hang w/us and welcome again! PS: Welcome to you too, Diana!!! glad to have you here...
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