[singoverme]

hi.
from the Great White North!
I'm so glad to have found neuro Talk. it seems right away like a group of kindred spirits. all members of a mysterious fellowship... the fellowship of suffering. The chronic pain and other kinds of hell many of us have gone through is medicine"s dirty little secret.
I am a woman with a nasty history of neurological problems starting about ten years ago.
About 15 months ago I started having problems getting up if iI knelt down.or lay down. In January I could'nt get up off the toilet or a chair without using my hands to push,and when I am in a public washroom I have to use my arms and hands to climb the walls like Spiderman.My knees started to buckle, amd I started to trip. over myself. it got worse til I was tripping all the time indoors -outdoors. if there was a dog hair on the sidewalk I would trip over it...My right leg doesnt obey me. it isnt getting the message.I have nearly fallen umpteen times and I have fallen several times .I am afraid I will fall crossing the street one day. Also , I am very stiff when i am sitting down for any lemgth of time It takes a couple of minutes to get going. In April I discovered I cant do stairs normally .I avoid stairs .I go one step at a time left right left right like a little kid. And I couldn't run to save my life. Now that's weird.
My muscles spazz out all the time , this has really begun to slow me down I have to walk alot as I dont drive, and I always loved walking Now it's me or less a drag. Xrays showed nothing that would account for this. plus I'm way to young to walk like a 90 year old.I have seen a neuro and have had other tests done, but no results yet.
I have also noticed my muscles shrinking and drooping on my right leg. and some weight loss [Now why can"t the fat go instead?]
Does anyone have a similar experience and what can I do about it?
Looking to hear from you.
Paulette

[dorrie]

WELL HELLO THERE FELLOW CANADIAN.....I AM ACTUALLY NOT FAR AWAY FROM YOU....KESWICK ONTARIO!! I am sorry to hear of your problems, Paulette. I myself am here for several reasons but I do have issues with stiffness. When I was working I was on my feet all day. If I sat down even for 5 minutes I would stiffen up. My ankles hurt all the time. If I had to get up in a hurry I would have fell as I could not get my ankles to motivate for a few minutes. If we are in the car for 20 minutes... I stiffen and have to walk very strange untill my feet loosen. If I rush it, it hurts. I don't know if your problems are like that but the stair thing...I understand. I cannot always do stairs well and if I am not careful I almost trip and fall. It is like one leg just dosen't lift high enough to clear the stair??? Aggravating to say the least. Anyway, welcome aboard...we are so glad to have yu here!! Take care...

[singoverme]

Hi, Drrie.
Thanks for your warm and cute welcome. for a fellow TIN MAN
Will chat more later, but This is the work comp . anfd I got to go home . Take care. from Hogtown
Paulette
.P S .Good Shabbes to y'all.

[Heidi L]

Hi,
I'm not a doctor, but you may want to check out the Parkinson's forum here. Stiffness and not being able to get up from a seated position can be symptoms.
Wobbliness may be PD or ataxia. Anyhow, I don't have either, but the folks here are friendly and will surely point you to a ton of resources.

Greetings,
Heidi

[lou_lou]

a am a trained PD listener,
I am a PD patient - what meds do you take -if any?
it maybe many things -
do you research your meds or symptoms online?
do you have a movement disorder specialist?
actually it sounds like -abit like - multiple sclerosis -? *(my sister has this -she drags a leg / with a swing motion-has profound muscle lockup, and she has muscle loss.
Parkies usually do stairs well - they are goals -we can run - or sometimes walk fast with a differently timed gait.
I am not 90 - I was dxd at the age of 29 but that was when they believed I was too young for this - *I am...
my suggestion - 2nd opinion -different doctor?

[singoverme]

Hi Heidi and Tina
Thanks for your replies. Someome else has suggested PD to me. Thats seems possible except. I dont shake at all. [I] dont know how to get onto the different forums as I am new to this site. and have a vision problem. I have an appt to see the neurologit dodiscuss the results of my tests in three weeks. Why do they make you wait so long?. I'm a hazard to myself
Take care
lette