[crissyd]

My name is Christy and I have had extremely painful ideopathic small fiber neuropathy. I am still very young and have 3 chrildren age 14-8. I finally was diagnosed about 6 years ago with pain getting worse as time goes along. My husband of 16 years left us 2 years ago because he ould not handle this disease. I am on 8 different medications including morphine which my doctors want to switch to methadone. I have been searching the web for years and am so glad that I have found this site. Thank you. I am excited about hearing others stories and finding new friends

[mrsD]

Welcome to NeuroTalk.

I hope you come and visit our Peripheral Neuropathy forum.

There are things we use that may help you.

http://neurotalk.psychcentral.com/forum20.html

This is a link to our subforum with informational posts:
http://neurotalk.psychcentral.com/forum119.html

[Darlene]

Christy,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Rrae]

Welcome to NT!
You've certainly found the right place to be. Make sure you come on over to the PN forum that MrsD is telling you about.
It's really amazing how much information there is for this frustrating condition. The more you know about it, the easier it is to feel in control.

I sure can relate. It seems there is no end with this pain.
There are options for improvement tho, so please keep your head up. The support and understanding here will help. It's like one big family.

I'm glad you are here

Caring,
Rae

[Abbie]

Hello Christy and WELCOME to NeuroTalk!

I see that MrsD has given you a couple of great links to help you find your way....

Please feel free to roam around any and all of the forums and join in anywhere! You are welcome to pull up a chair and kick off your shoes.

Should you find that you have questions or are needing assistance please do not hesitate to ask as someone will always be around shortly to help in any way that we are able.

I look forward to seeing you around the board.

Abbie

[jemjeff10]

Originally Posted by crissyd

My name is Christy and I have had extremely painful ideopathic small fiber neuropathy. I am still very young and have 3 chrildren age 14-8. I finally was diagnosed about 6 years ago with pain getting worse as time goes along. My husband of 16 years left us 2 years ago because he ould not handle this disease. I am on 8 different medications including morphine which my doctors want to switch to methadone. I have been searching the web for years and am so glad that I have found this site. Thank you. I am excited about hearing others stories and finding new friends

hello wow sorry to hear you have this neuropathy i have a different neuropathy but its simular I got my diabetes diagnosed in may of 2010 and i had surgery in my stomach this past april of 2011 developed this burning feet stabing lightening bolts pain in my left leg from meralgia paresthetica its a pinched nerve and i have been in such pain that i asked for pain medications in october of 2010 so it has not gotten any better i have my days that i am useless as a frog standing walking doing my dishes at the kitchen sink starts my pain up .
I have not heard of any remedys for my condition I had to quit employement just to weak and tired my diabetes has been controlled and high blood pressure is controlled and i take like 8 meds a day to . I always was a busy man I loved money i had self employement income and i was a salesperson at THE HOME DEPOT AND OTHER MAJOR LUMBERYARDS IN MY AREA I MISS WORKING . it was good to get my disabilty approved this pass november so i am a bit better that income is coming in but i would rather be working i was hoping maybe to work one day a week but i don't see myself being able to do it so i go to diabetic talk groups once a month and hear other problems but i am finding out there's no good treatment for my conditions i have I was thinking about getting water therapy and some excercise for my back soon I am gonna have to pay out of my pocket for it but i thinks its worth a try .I am hoping that maybe the swiming and useing some of the gym equipment could make me get off the pain medications and then i may be able to maybe work a day a week i am so bored being home I lost a sister last month and i see my other family members in worst conditions than me I need the therapy so have you talked to anyone about therapy for your conditions keep in comtact with me i will let you know if i get anyless pain from the water therapy goodluck from jemjeff10

[Beauhill]

Hello everybody:

I'm new to the group and have had PN symptoms for about 4 years. Been through many tests and they cannot find anything to date. I am scheduled for a muscle and rural biopsy next week.

Has anyone had this procedure and what is your opinion about this test?

I have had mild drop foot after a round of golf, numb feet and toes and occasional random shooting pains from time to time but they are shirt lived. i have had life changing results by wearing the MBT shoes: Great for walking but a little tougher just standing around. Hope this helps

[mrsD]

Welcome to NeuroTalk:

Please come to our PN forum... We have a general discussion forum here:

http://neurotalk.psychcentral.com/forum20.html
and a subforum with informational type posts here:

http://neurotalk.psychcentral.com/forum119.html

In general over the years, the consensus from our posters has been that the sural biopsy, is not useful. It also can impair you and cause permanent pain.

The new procedure called a skin punch biopsy is preferred now.
This measures the nerve receptors in the skin and shows
deterioration better, without damage.

If you go to our forum and type in "sural" in the search box in the upper right of the first page of the forum there,
you will find:
108 posts... on the regular forum (the subforum is at the top).
This is one example:
http://neurotalk.psychcentral.com/sh...ighlight=sural

Searches done by individuals don't link over into threads, they expire here. So you will have to do your own search.
But I can tell you now, that a sural biopsy may not be a good idea for you.

Originally Posted by Beauhill

Hello everybody:

I'm new to the group and have had PN symptoms for about 4 years. Been through many tests and they cannot find anything to date. I am scheduled for a muscle and rural biopsy next week.

Has anyone had this procedure and what is your opinion about this test?

I have had mild drop foot after a round of golf, numb feet and toes and occasional random shooting pains from time to time but they are shirt lived. i have had life changing results by wearing the MBT shoes: Great for walking but a little tougher just standing around. Hope this helps

[jemjeff10]

hello criss wow I found someone with the same condition that I have hey criss I am a older man 58 yrs old and I been a very active man worked around the clock I was diagnosed with this in my left lef since may of 2010 I got diabetes and then had cancer surgery now this leg is killing me my feet are on fire neuropathy is bad the wind or a breeze blowing on myleg starts the pain I have a hard time keeping clothes on any thing rubing on the leg make the pain increase I take pain meds gabapentin three times a day morning pain is the worst Iam going to a chronic pain talk group at the hospital I really need some help I have bursitus is also in my hips I just fell apart I put a aloe vera cooling gel that I got at cvs 9 CALLED AFTERSUN ITS A BLUE GEL AND ITS ODERLESS TRY IT it has lidocane in it it helps a little also I do use capzacine cream too I am sorry to hear that is has really messed up your life . It really has me depressed at times i am not a person who likes to sit still I have two grown children in there 30's and I have grandchildren its so hard to deal with it every day i have had it since 2003 it just made me slower and slower hard to bend down and it feels like it will cripple me i remember when I was out of work in 2003 it was more on my right side i couldn't pull myself out of the water onto the raft while swiming it weakend my muscles so bad it may be the diabetes cause it does that to the muscles from hoaving high blood sugar hey criss keep in touch will you please I can chat live too if you want to set up on skype or aol's aim i do caht live chat is cool ok good luck and I hope to catch you again keep you head up it has to get better that's what i say to myself all the time

Originally Posted by crissyd

My name is Christy and I have had extremely painful ideopathic small fiber neuropathy. I am still very young and have 3 chrildren age 14-8. I finally was diagnosed about 6 years ago with pain getting worse as time goes along. My husband of 16 years left us 2 years ago because he ould not handle this disease. I am on 8 different medications including morphine which my doctors want to switch to methadone. I have been searching the web for years and am so glad that I have found this site. Thank you. I am excited about hearing others stories and finding new friends