I was diagnosed last May with "probable MS" I went to a second neurologist for another opinion and last week he suggested Cadasil after seeing my most recent MRI. My husband was thrilled it wasn't MS and thinks life will move on as usual, my kids are scared especially the oldest who is expecting.
Where do I go from here???
I was told to live as healthy a life as possible, given meds for headaches, and told we will see you in three months.

Hi, I'm Ruth E.
I just joined. I am also in Experience Project which is a good support group too. I also have 4 children - all boys- my youngest son is on a ship, USMC. He says "Loose lips, sink ships" He's 26. The other 3 are 43, 41, 35. My second son has Chrohn's Disease, he has a lot of problems with it but it is wonderful the way he deals with it.
I'm sorry to hear about the MRI. What are the spots? I had two MRIs in Oct, they sent me a CD, I guess I'm supposed to know how to open the dumb thing. I asked for the results, and that's what I got. I will go back to OHSU in April. (OREGON) . I also have a Movement Disorder, my nerves tell my muscles when and where to jerk. I found a book called "Drug -Induced Movement Disorders by Dr. Kapil Sethi, on my Kindle.
I live in the US, on the longest Peninsula in the world. I guess that's why they call it Long Beach Peninsula. We have only been here since November. I wish you and your family well no matter what you are facing.

Ruth,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Hi Annalie,
I am also in Adelaide and was diagnosed with Cadasil about 9 months ago through the RAH. My sister has also been diagnosed and also my mum. Ive been looking for a possible support group but dont know of one in adelaide. Id be happy to chat with you about things. Im almost 43, my sister 46 and my mum 68. Tania