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Just found the site and thought I would give it a try. I have quite a few neuro issues; some genetic, some from physical damage to neck, back & joints. Some might say I am a basket case that should just relax and accept my predicament. That though never served me well, and truth be told, I came from stronger stock than that.
What I've seen seems quite interesting so far at this site. I have just gone through another major change with hurtles to jump to put me back "two steps" from where I started 4 months ago. ![]() I am looking for information in the following areas: meds (prescription or natural) and/or treatments for CMT (Charcotte-Marie-Tooth); Neuropathic pain / tremors, etc from neuropathic issues related to DDD & DDJ in back and nexk; and neuropathy from joint degeneration from arthritis and physical injuries. I have been on a couple of neuropathy meds including Neurontin and Cymbalta. None of which I am on now because of the anit-seizure meds I am on because of.... I just had 3 aneurysms clamped a month ago and in recovery at home. So far the docs and surgeons are saying that I am having a miraculous recovery, and with the fact that I was walking out of the hospital 8 days later when they expected 2 - 3 months in the hospital recovering maybe they are right,but I have a few issues that came up after surgery. Some memory and personality related, some physical (like I immediately seemed to go into menopause - tho that was a happy side effect as far as I am concerned). Some are physical as in periodic tremors and electric shocks in back and buttocks that I am still not sure if are surgery related or med related. On top of all the above, I go to a chronic pain / coordinated treatment center for injuries that I sustained in several "fatal" accidents. One of which ended up on CNN because of the fact that my son and I walked away and people kept lining up at the hospital to see the "miracle mom". They even tried to touch me... that was freaky. There is my log drawn out story. See you in the forums. If you could send me a few links to forums or pertinent info that might be of interest, I would be grateful. Thanks for the welcome....Dyan |
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