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Old 06-07-2007, 03:22 PM #1
maria mc maria mc is offline
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hi ALL IM NEW ON HERE I HAVE NF AND HAVE 3 CHILDREN WHO ALSO HAVE NF MY CHILDREN HAVE THIS QUITE MILD , I HAVE LOTS OF PROBLEMS WITH MY NECK C5 AND C6 , I SEEM TO HAVE LOTS OF TINGLING IN MY HEAD AND RIGHT HAND GOT TO SEE DOC IN JULY . I HAVE THE CALS AND TUMORS ON THE SKIN I HAVE SLIGHT PLIXFORMA ON FACE AND RIGHT OF CHEST, AND RIGHT ARM JUST THOUGHT ID SAY HI TO ALL X i have neurofibromatosis
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Old 06-07-2007, 05:28 PM #2
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Hello Maria,
I hope you can find a good dr and are able to get good treatments for your family.
here's some info and the link for the main forum topic page -
http://neurotalk.psychcentral.com/sh...ad.php?t=18185
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Old 06-07-2007, 06:24 PM #3
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Hi Maria, my daughter has NF, too. You can find some excellent information here, but you might also check the children's tumor foundation (formerly the national nf foundation) bulletin board at www.ctf.org
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Old 06-08-2007, 04:44 PM #4
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thank you iv bee on ctf BB found it very useful how olds yur daugher and how is she doing and how do you cope with her having nf sorry for all the qustions x
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Old 06-08-2007, 06:52 PM #5
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Hi, Maria, welcome!
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Old 04-16-2008, 02:13 PM #6
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heh maria I have NF 1 as well. So do my 2 children. My sons case is not that mild. He is 6 my baby is just 1 as of April no signs except for cals
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Originally Posted by maria mc View Post
hi ALL IM NEW ON HERE I HAVE NF AND HAVE 3 CHILDREN WHO ALSO HAVE NF MY CHILDREN HAVE THIS QUITE MILD , I HAVE LOTS OF PROBLEMS WITH MY NECK C5 AND C6 , I SEEM TO HAVE LOTS OF TINGLING IN MY HEAD AND RIGHT HAND GOT TO SEE DOC IN JULY . I HAVE THE CALS AND TUMORS ON THE SKIN I HAVE SLIGHT PLIXFORMA ON FACE AND RIGHT OF CHEST, AND RIGHT ARM JUST THOUGHT ID SAY HI TO ALL X i have neurofibromatosis
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Old 04-16-2008, 06:44 PM #7
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Hi there Maria, I'm sorry to hear about your's and your children's problems. On the other hand, as those are the reasons that have brought you here to us, I guess it's been a Blessing in disguise, 'cos we wouldn't have got to meet you other wise.

Hopefully you'll get to know some of the wonderful, supportive members here, and don't be shy at asking questions because we're all happy to help out in any way we can.

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