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Questions about people with MS who are using TYSABRI

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Old 04-27-2008, 09:52 AM #1
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Confused Questions about people with MS who are using TYSABRI
I am a new member so I just wanted to say hi to every one. I have had MS since 1998. I have tried all of the other shots and nothing helped me out so I am getting ready to start taking TYSABRI. I was just wondering about other people experiences that are taking it. Do you seem to notice improvements in your way of life or do you just remain about the same. What kind of side effects have you encoundered. I was just curious about it before I start taking it.

Hindu31
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Old 04-27-2008, 10:52 AM #2
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Welcome to NeuroTalk Hindu30 (or is it Hindu31?)

We have a forum just for you, Multiple Sclerosis, at http://neurotalk.psychcentral.com/forum17.html

and a very active thread about Tysabri. You should check it out. There are many people here who are on, have been, or are starting Tysabri. (I am one of that group!) Lots of people there to answer your questions.

If you have any questions, please feel free to ask...
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Old 04-27-2008, 11:33 AM #3
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Quote:
Originally Posted by hindu30 View Post
I am a new member so I just wanted to say hi to every one. I have had MS since 1998. I have tried all of the other shots and nothing helped me out so I am getting ready to start taking TYSABRI. I was just wondering about other people experiences that are taking it. Do you seem to notice improvements in your way of life or do you just remain about the same. What kind of side effects have you encoundered. I was just curious about it before I start taking it.

Hindu31
Tysabri is a stabilizer, and is not intended to improve one's physilogical health. The goal with Tysabri is slow MS progression.

I have experienced some minor quality of life enhancements, but nothing significant. What is significant is that my quality of life has not decreased, and in that respect, Tysabri seems to be working.

Personally, I have not had any side-effects that I can attribute to Tysabri. There are some folks who have reactions to it and either stop using the medication or are infused along with benadryl or similar.

Overall, it is a simplistic medication to use.

-Vic
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Old 04-27-2008, 11:53 AM #4
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Hi Hindu! Welcome to NeuroTalk!
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Old 04-27-2008, 01:16 PM #5
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Hi Hindu....welcome to NeuroTalk!
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Old 04-27-2008, 02:32 PM #6
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Hello Hindu and Welcome to NeuroTalk. Just wanted to say I'm glad you found us and Good Luck w/the Ty.

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Old 04-27-2008, 06:04 PM #7
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Hello from me as well.

I do have MS but I'm not on Tysabri. As Av8rgirl mentioned, we do have lots of members who are though. I'm sure you'll be able find the answers that you're looking for in the Tysabri thread.

I look forward to getting to know you over in the MS Forum: maybe in The Stumble Inn where we get together for a little fun.
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Old 04-29-2008, 12:18 AM #8
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Hi Hindu and welcome!

Come on down to the MS section and talk to us on the Tysabri thread...there's quite a few of us there!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
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Old 04-30-2008, 01:07 AM #9
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

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