Home Menu

Site Navigation



New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
NeuroTalk Support Groups > > >

Questions about people with MS who are using TYSABRI

Reply
 
Thread Tools Display Modes
Old 04-27-2008, 09:52 AM #1
hindu30 hindu30 is offline
New Member
  
Join Date: Apr 2008
Posts: 1
15 yr Member
hindu30 hindu30 is offline
New Member
 
Join Date: Apr 2008
Posts: 1
15 yr Member
Confused Questions about people with MS who are using TYSABRI
I am a new member so I just wanted to say hi to every one. I have had MS since 1998. I have tried all of the other shots and nothing helped me out so I am getting ready to start taking TYSABRI. I was just wondering about other people experiences that are taking it. Do you seem to notice improvements in your way of life or do you just remain about the same. What kind of side effects have you encoundered. I was just curious about it before I start taking it.

Hindu31
hindu30 is offline   Reply With QuoteReply With Quote

advertisement
Old 04-27-2008, 10:52 AM #2
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
  
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default
Welcome to NeuroTalk Hindu30 (or is it Hindu31?)

We have a forum just for you, Multiple Sclerosis, at http://neurotalk.psychcentral.com/forum17.html

and a very active thread about Tysabri. You should check it out. There are many people here who are on, have been, or are starting Tysabri. (I am one of that group!) Lots of people there to answer your questions.

If you have any questions, please feel free to ask...
__________________
Cheryl
Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
Old 04-27-2008, 11:33 AM #3
Victor H Victor H is offline
Senior Member
  
Join Date: Jan 2008
Posts: 1,090
15 yr Member
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
15 yr Member
Default
Quote:
Originally Posted by hindu30 View Post
I am a new member so I just wanted to say hi to every one. I have had MS since 1998. I have tried all of the other shots and nothing helped me out so I am getting ready to start taking TYSABRI. I was just wondering about other people experiences that are taking it. Do you seem to notice improvements in your way of life or do you just remain about the same. What kind of side effects have you encoundered. I was just curious about it before I start taking it.

Hindu31
Tysabri is a stabilizer, and is not intended to improve one's physilogical health. The goal with Tysabri is slow MS progression.

I have experienced some minor quality of life enhancements, but nothing significant. What is significant is that my quality of life has not decreased, and in that respect, Tysabri seems to be working.

Personally, I have not had any side-effects that I can attribute to Tysabri. There are some folks who have reactions to it and either stop using the medication or are infused along with benadryl or similar.

Overall, it is a simplistic medication to use.

-Vic
Victor H is offline   Reply With QuoteReply With Quote
Old 04-27-2008, 11:53 AM #4
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
  
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default
Hi Hindu! Welcome to NeuroTalk!
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN

"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
Old 04-27-2008, 01:16 PM #5
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Hi Hindu....welcome to NeuroTalk!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Old 04-27-2008, 02:32 PM #6
DM's Avatar
DM DM is offline
Legendary
  
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
DM DM is offline
Legendary
DM's Avatar
 
Join Date: May 2007
Location: Around
Posts: 10,109
15 yr Member
Default
Hello Hindu and Welcome to NeuroTalk. Just wanted to say I'm glad you found us and Good Luck w/the Ty.

__________________
DM




.
DM is offline   Reply With QuoteReply With Quote
Old 04-27-2008, 06:04 PM #7
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
  
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default
Hello from me as well.

I do have MS but I'm not on Tysabri. As Av8rgirl mentioned, we do have lots of members who are though. I'm sure you'll be able find the answers that you're looking for in the Tysabri thread.

I look forward to getting to know you over in the MS Forum: maybe in The Stumble Inn where we get together for a little fun.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.
Koala77 is offline   Reply With QuoteReply With Quote
Old 04-29-2008, 12:18 AM #8
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
  
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default
Hi Hindu and welcome!

Come on down to the MS section and talk to us on the Tysabri thread...there's quite a few of us there!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
Old 04-30-2008, 01:07 AM #9
Darlene's Avatar
Darlene Darlene is offline
Legendary
  
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Default

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone else on tysabri? barb02 Multiple Sclerosis 19 08-28-2008 09:06 PM
to take tysabri or not? debbie0395 New Member Introductions 6 04-16-2008 11:18 PM
To Tysabri or Not To Tysabri--That is the question! Keely Multiple Sclerosis 3 03-10-2008 11:46 AM
Tysabri ArmyMahmaa Multiple Sclerosis 7 02-07-2007 04:17 PM


All times are GMT -5. The time now is 10:31 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home