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08-16-2008, 10:31 AM
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Junior Member
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Hi,I'm married to pain and have been for many years. It's hard to watch someone you love suffer from severe head pain every day of their life and ther's nothing you can do to help. My husband has Occipital Neuralgia ,a very severe case of it. I have spent all of my free time researching different treatments and options. He has the nerve stripped,severed and injected none of which worked but only made it worse.We are now waiting for surgery to put a peripheral nerve stimulater in his head which zapps the pain.He did a test one back in May and it reduced his pain and meds by half so now we wait for the permanent one which could take forever because we live in Canada and time is something my husband doesn't have very much of anymore. A solution is there for him but we have to wait our turn which could be months or as much as a year waiting list.Thanks for listening.Just needed to vent!
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08-16-2008, 11:28 AM
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Grand Magnate
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Wow, married, that's just awful for your dear hubby! And for you, too.
I hope you are able to get some helpful input and information here. There are so many kind and knowledgeable folks here. A big WELCOME TO NEUROTALK!!!
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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08-16-2008, 12:27 PM
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Grand Magnate
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Welcome to Neuro Talk...wow too bad about the waiting list. I just wanted to welcome you to the board and give you the link below for Occipital Neuralgia...hope things start to look up soon.
 http://neurotalk.psychcentral.com/forum105.html
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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08-16-2008, 03:38 PM
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Wisest Elder Ever
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Hi and welcome to NeuroTalk!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-16-2008, 08:43 PM
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In Remembrance
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It's very nice to meet you.
 I'm very sorry about your husband's condition, but he is very lucky to have so much support from you. I know that means a lot to him. My wife was supportive for the first year or so before she gave up on me, and it made such a difference! So know that you are already probably helping your husband more than you know.Good luck to you and your husband, MTP, and I hope that by some miracle he gets his surgery a lot sooner than you expect. |
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08-17-2008, 04:31 AM
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hello sorry to hear what you and your husband are going through your find plenty of info here from people suffering with your husbands condition also from carers the surgery sounds hopeful, I have head pain and know its difficult for my partner, so well done and welcome
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the light connects the many stars, and through the web they think as one, like god the universe we learn about our self's, the light and warmth connect us, the distance & darkness keep us apart . vini . |
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08-17-2008, 11:42 AM
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Wise Elder
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Hi, Mrs.Pain!
 Welcome to NeuroTalk!Wow, I sure hope they can get him in soon for that implant. Please feel free to vent, you have many new friends here at NT.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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08-19-2008, 05:39 PM
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Junior Member
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Quote:
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08-20-2008, 11:47 AM
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Magnate
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Hello and Welcome to Neurotalk - you will meet many great and supportive people here!!
If you need anything, please don't hesitate to ask - I am more than happy to help you in any way I possibly can! Thanks and i'm looking forward to seeing you around the forum soon! Alison
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To the World you may be one person, but to one person, you may be the World. |
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08-20-2008, 02:38 PM
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Legendary
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Hello and another Welcome to Neurotalk here. Sorry for all your hubby's pain and troubles, but I'm glad you found us. NT is a very supportive, informative and friendly community, so you just come and vent anytime.
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DM . |
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Hello
Hi, MTP...
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