My leak is spontaneous, but had an operation on my back a couple of years ago to remove part of a venous malformation on the right side of my back. unfortunately it did not go too well and they ended up removing quite a large area of my erector spinae muscle and latimus dorsi, nice! I also ended up having about 22pts of blood transfused. Its left me less able than I was before the operation and then I developed this headache about a year later which im sure the op has somthing to do with it. I live in the south west of England which is good that I dont get the hurrendous medical bills but the knowledge about venous malformations & spinal leaks because it is so rare is not that good. I have 2 young children so taking it easy is quite hard to do. I try to minimize carrying etc but as I do not drive I find often I have to carry shopping which really agrivates the headaches. Quite frustrating that alot of buy one get one free offers I have to leave the free one because I cannot carry it!!! but its really nice to able to talk to others about this I have a partner who works really hard, but I think he's simply had enough of me always being ill, he's reach the point he does not want to
know anymore. Hey but at least Ive got you guys now