Hello my name is Roy and i live in Devon England,and thats nowhere near London in case you wondered, i was told i had a pituitary tumour 18 months ago, but who knows how long i have really had this, the first 12 months were ok as far as treatment goes, and this was with drugs, but lately have felt crap and very tired with a lot of headaches as they keep increasing the dose because treatment has not worked as they expected , they now tell me it has wrapped around some blood vessels making surgery more difficult now if they go down that route, i know there is only one more level of drugs they can put me on , i now am off work at the moment because of feeling so bad, i am nearly 45 years old and feel so hopeless because of this as i am not doing things for my family like i should, has anyone got a magic wand i can borrow please.
cheers Roytheboy

Roy,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

I have listed a link hopeing you can get some answers there.

http://neurotalk.psychcentral.com/forum34.html

Again welcome, looking forward to seeing you around.

Darlene

Hi Roy and welcome to NeuroTalk! I'm glad you decided to join!

I don't have any experience with the condition you've mentioned but hopefully the link I've posted to the General Health Concerns & Rare Disorders Forum will be of some help. I believe there is a thread within this forum that talks about pituitary problems.

http://neurotalk.psychcentral.com/forum2.html

Hello Roy and welcome to NeuroTalk. Wow, I sure wish I had that magic wand for ya! But, I'm glad you found us, as this community here is caring, helpful and so friendly. Please take a look around and make yourself at home.

Hello and Welcome to Neurotalk, Roy!! You will meet many great and supportive people here!!



I'm sorry to hear about everything that you are currently going through . We have something in common, we are both from England lol!!

If you need anything please don't hesitate to ask, I'm more than happy to help you in anyway I possibly can and i'm sure others will be also.

Take care and I look forward to seeing you around the forum soon!!

Alison

Thank you for the message, it was kind of you.
Roy

Thank you for the replys it was kind of you, i am not that good with pc`s and i hope i have posted this correctly.
Roy

Welcome to Neuro Talk, follow those links and do not hesitate in posting questions. you will find this to be a friendly, caring and helpful group of people, again welcome to NT

Hi and welcome to NeuroTalk.

My husband also had a tumor in that area wrapped around blood vessels. I would like to let you know that it was successfully removed without problems and it was benign. Good luck to you.

Roy, have you investigated treatment by a specialist in EEA (expanded endonasal approach) pit surgery? I am here for another problem, but happen to be a neuro ICU nurse in Pittsburgh. There is a doctor at UPMC named Amin Kassam and he has been known to work wonders. We frequently get cases from all over the world that others won't touch. It's certainly worth your time to investigate being treated or seen by him-he's sort of "the man" when it comes to this.
Hope this helps!