Hello to all -
My name is Llakel and I live in The Bahamas.

I have been diagnosed with Myasthenia Gravis since 1992. I have been taking Mestinon consistently and have had 2 or 3 occasions when we had to add prednisone. Three weeks ago everything seemed to go downhill and so now I am currently on prednisone and mestinon but my doctor wants to move on to cellcept - which for some reason - terrifies me.

But my current symptoms makes it impossible to me to have a "normal" day. For instance - I used to get up at 6:30 a.m. in time to get ready for work and drop my son to school. I can no longer do that - I have to rest-up until about 8:00 am and take a leisurely time getting ready for work and usually have to take a breather by early afternoon. I'm used to going constantly - all day - taking care of child, home and work. But now - I feel so limited and recently - literally breathless.

I used to be a part of an online MG support group but that forum has been discontinued and I found during that time that the most informing information was from those who were in the same shoes - so to speak.

That is why I am elated to find this group and want to say I look forward to any light that can be shed on MG is any way and will endeavour to enlighten/support any whom I might be able to help.

So my first most humble request is - what are your thoughts/experiences with cellcept?

I look forward to chatting.

Hello and welcome to Neuro Talk, glad you found us sorry for the reason. here is a link to the MG forum's, feel free to post questions and read others post for some insight to MG and or what you are dealing with, such as meds, pains mobility issues. You will find a lot of helpful and kind people herre, again welcome to NT

MG forum http://neurotalk.psychcentral.com/forum77.html

Socila Chat forum's http://neurotalk.psychcentral.com/forum35.html

we goof off here a lot

Main Index of forum's http://neurotalk.psychcentral.com/

hello llakel ... so glad that you have decidd to join us here at neurotalk ... you will find lots of friendly and supportive people here ... i have included a link to our Myasthenia Gravis forum where you will probably find the answers you're seeking and the second link is to our medication forum where you might find answers to taking cellcept and what others think about it ...

http://neurotalk.psychcentral.com/forum77.html
http://neurotalk.psychcentral.com/forum72.html

feel free to check out any of the forums and jump right in where you feel comfortable ... both in answering and in asking ... again ...

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene

Hi and welcome to NeuroTalk. There is alot of supportive people and a wealth of information. Good Luck!