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Old 03-17-2009, 05:03 PM #1
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Confused Long time Parkinson's
Hi! I am Martha's caregiver or at least try my best. Martha has been disgnosed with P for about 25 years, yes 25, It doesn't get better. She has had most of the standard meds, 6 months ago she was taking (7) 25/250 sinemet, thats one every two hours. At that time she was still experiencing on/off. About 3 months ago the on/off stopped and the sinemet quit working.She now takes (2) 25/250 sinemet a day more because she doesn't want to be without it in case it is doing something.

Are you sure you want to read this sad tale?

In December of '07 she had the DBS surgery at Baptist Hospital in Winston Salem. It worked on one side but not the other. Her tremor and dysconeshia (never was a very good speller) are all GONE, but the side that doesn't work and is turned off, caused her to loose volume and clearety. She is in a transport chair in which she is dependent on someone to move. Looks like my story is too long. She is now in assisted living, she will be 82.
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Old 03-17-2009, 05:34 PM #2
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Hi FLCaregiver and welcome to Neuro Talk. We have a very active Parkinson's forum and here is the link to it..http://neurotalk.psychcentral.com/forum34.html

I'm glad you've joined us...
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Old 03-17-2009, 05:58 PM #3
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Hi, and welcome to NeuroTalk! This is a great place to come to, with lots of friendly and caring people. Sometimes caregivers need a little TLC.

Here's a link to the Caregiver's Support forum: http://neurotalk.psychcentral.com/forum56.html
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Old 03-17-2009, 09:26 PM #4
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Hi, FLC! It's nice to meet you! Welcome to NT. I'm very sorry to hear about Martha. But I'm glad that at least she has you. I don't know a lot about Parkinson's, but no story is too long. If you have something to say, get it off your chest. Maybe just make a *long story* note in the title? Good luck to you, FLC, and to Martha, too. God bless...
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Old 03-18-2009, 12:16 PM #5
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welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ... i see you have already been given a few links to start you out ... i hope to read some of your posts soon ... again
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Old 03-19-2009, 01:37 AM #6
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene
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