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Hi from Ireland

 
 
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Old 04-19-2009, 08:17 AM #1
Cooze Cooze is offline
Junior Member
  
Join Date: Apr 2009
Location: Ireland
Posts: 18
15 yr Member
Cooze Cooze is offline
Junior Member
 
Join Date: Apr 2009
Location: Ireland
Posts: 18
15 yr Member
Default Hi from Ireland
Hi there,

I am a Loeys Dietz Syndrome patient. LDS is a connective tissue disorder and affects me in a number of ways. The latest appears to be with a gigantic 11cm Tarlov Cyst! Ive posted about this in the appropriate section.

Im here to try find help on this as I need to get rid of it!!! Doesnt look like many Docs are willing to touch them though...just great! There isnt much room inside me for anything else!

I would be grateful for any advice members could offer.

Cheers
Rachel
Cooze is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (04-19-2009), tamiloo (04-20-2009)
 

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