I have been diagnosed with rsd in both legs and one hand. I have had several snb's and the longest one lasted was 7 hours. I had rfa done about 4 weeks ago and have had no improvement. My pain doc wants to pursue the scs next.

This whole thing is very overwhelming for me!! Does anyone else get goosebumps for apparently no reason?? Sometimes it's just one side of my body or sometimes it's just my legs. I also get what feels like icy jolts at random times over random parts of my body. Sometimes it feels like I have water running down my legs but I check and there really isn't any. Also various spots on my body feel really cold at times, including inside of my head.

I feel like a total freak and I am so scared with all of these strange and sometimes very painful sensations. I have still been able to work, as a nurse, and I actually have a pretty positive attitude and try to keep things in perspective. Sorry, I just need to vent sometimes and no one I know has this condition.

One thing I haven't had is swelling of my affected limbs. Is that on the horizon for me? Or God willing, maybe not? Are there cases of rsd that don't disable people? That is my biggest fear!

Prayers are always appreciated and any comments/questions welcomed!!

Hi, and welcome! Have you checked out the RSD forum yet?
http://neurotalk.psychcentral.com/forum21.html
You're bound to find someone there with advice, though you'll find support anywhere you look here!

I don't have any words of wisdom, but wanted to welcome you...and prayers are included!

Hello SB, and welcome to NeuroTalk! This is a great place to hang out with many interesting forums, and lots and lots of friendly and helpful people.

Hi, and Welcome to NT.

I'm sorry you're suffering with rsd. Seems to be some pretty bad stuff to deal with.

I've worked through my injuries, knowing now that I've caused myself more pain and frustration than had I not worked. But had I not worked I couldn't have paid for what my family needed, equally as painful. There's just no good balance for bad health. You being a nurse, I know you're working hard. I'm self employed and it made the difference for me being able to earn money or not earn money. I can't imagine having to work on demand. I don't think I could have kept any public job. So you're doing good to remain working. I know you're suffering because of it. Work is good therapy too.

Those strange sensations are overwhelming. I hope you get relief soon.

just dont do surgeries or nerve blocks. rsd spreads quickly when quacks dig into your body. Worse thing I ever done was listen to quack pain specialists. Two surgeries later left me in so much pain and wishing I could have known to stay away from surgery crazed pain specialists. nerve blocks are even worse.

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene