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05-29-2009, 01:40 PM | #1 | ||
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New Member
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Hi to everyone
I'm Regina and I have just been diagnosed (10 days ago)with hyperthyroid and graves eye disease .First they treated my swollen eyes for allergies even though I told them that I don't have allergies. This eye disease is So....... frustrating. And then you feel so helpless cause you've been told that there is NO cure and even if the thyroid levels go down the eye problem might never go away. So ,are they saying that I'll look like an ill 85 year old women for ever? I'm only 37! I've noticed that my eyes swell up more after eating some foods , so I started reading some more and saw that we're supposed to eat certain foods and I'm not sure what I can eat anymore. Can someone please help because I am starving and I'm to scared to eat anything now. |
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"Thanks for this!" says: | (Broken Wings) (05-30-2009) |
05-29-2009, 05:07 PM | #2 | |||
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Community Support Team
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welcome Regina
so sorry to hear what you are going through because of the Graves Disease perhaps members on our Autoimmune Forum may be able to answer your questions about the eye problems http://neurotalk.psychcentral.com/forum44.html all the best to you
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | (Broken Wings) (05-30-2009), reginab72 (06-03-2009) |
05-30-2009, 12:01 AM | #3 | |||
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Senior Member
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Bless your heart... I'm sorry for what you are going through... and just want to give you a hug!
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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"Thanks for this!" says: | (Broken Wings) (05-30-2009), reginab72 (06-03-2009) |
05-30-2009, 06:07 AM | #4 | |||
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Welcome There's lots of friendly people here. Hang in there. You'll get it figured out. (Broken Wings)
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(Broken Wings) . . |
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"Thanks for this!" says: | reginab72 (06-03-2009) |
05-30-2009, 08:53 AM | #5 | |||
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Magnate
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Hello Regina, and welcome to NeuroTalk! I'm sorry you are going through so much right now, and I hope things get better for you soon. Feel free to join in wherever you feel comfortable. We're glad you found us, because this is a great place to visit or stay awhile.
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Mair . |
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"Thanks for this!" says: | (Broken Wings) (05-31-2009), reginab72 (06-03-2009) |
05-31-2009, 08:15 AM | #6 | |||
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I hope you feel better soon. I have a friend with Graves Disease, and she is on a gluten free diet. That may help you too..just a suggestion. Could you ask your doctor? I am Dew, it is nice to meet you
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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"Thanks for this!" says: | (Broken Wings) (05-31-2009), reginab72 (06-03-2009) |
05-31-2009, 09:33 PM | #7 | ||
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Junior Member
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Aren't you going to specialist for this disease? You should get online and try to find one in your area or even ask your primary care physician to refer you to one so they can assist you in your eating.
Jillybean |
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"Thanks for this!" says: | (Broken Wings) (06-01-2009) |
06-03-2009, 07:35 PM | #8 | ||
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Quote:
She just gave me some meds and a new appt. 7 weeks out . |
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"Thanks for this!" says: | (Broken Wings) (06-18-2009) |
06-06-2009, 03:15 PM | #9 | ||
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Quote:
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"Thanks for this!" says: | (Broken Wings) (06-18-2009) |
06-18-2009, 02:55 PM | #10 | ||
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Quote:
my Vision really sucks lately, so this will be a quick post. My MRi of course showed enlarged muscles and now the doc but me on 40 mg of prednisone and I wonder if that is even high enough to make a difference. I would love to hear about your journey and what you did to help yourself. thanks, Regina I read online before about this lady and she said that she put 1 drop of honey in her bulging eye at bedtime and 1 drop of rose water concentrate in her eye in the morning. I 'm willing to do anything but this sounds scary. What do you THINK about that??? |
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"Thanks for this!" says: | (Broken Wings) (06-18-2009) |
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