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Old 08-16-2009, 08:40 PM #1
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hello,

I have obstructive hydrocephalus and have had a VP Shunt since I was 3 mo old. I am now 29 yrs old. I have led a pretty normal life for the past 26 years playing sports running no real problems with my shunt until about 3 years ago I started having severe headaches and dizziness and vomiting and blurring vision ever since then I have had nothing but headaches literally. I have had to have I believe 5 revisions I think I have kinda lost count it has been a rough 3 years. I am still not right. I have not been able to run for at least a year due to the headaches. I am very fatigued, still vomiting, my whole personality has changed. I want my life back!! This shunt thing has ruined my life but the neurosurgeon tells me that I would die without one so I am just trying to hang on but these headaches have to stop. They have tried different shunt and adjustments and also various meds and nothing seems to work. Anyway, I was just wondering if anyone has been though a similar situation. There was talk of doing an Endoscopic Third Ventriculoscopy?? Any advice??

Thanks
Heather
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Old 08-16-2009, 11:28 PM #2
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Hello Heather

And welcome, I know nothing about what you are going through. But sure
feel for you.

I hope you find some answers.

Donna
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Old 08-17-2009, 12:28 PM #3
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Hi Heather, here's the link to the hydrocephalus forum, in case you haven't found it on your own by now:
http://neurotalk.psychcentral.com/forum14.html

I'm probably a day late and a dollar short...seems like all the "newbies" show up after my bedtime! Welcome to the community! You'll find lots of support here, and hopefully some answers as well.

P.S. White Sox? Red Sox? Other? Just curious!
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Old 08-17-2009, 02:38 PM #4
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Welcome Heather,

I suffer headache 24/7 so I know how draining it can be. While I can't make any suggestions because my condition is different, I'm confident that you'll find folks here who can help with the specifics. The rest of us are here to listen anytime you need to complain, whine or throw a good old-fashioned cathartic tantrum.
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Old 08-18-2009, 04:24 PM #5
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Hello Heather, and welcome to NeuroTalk! You will find this is such a nice place to visit, with lots of friendly, caring and helpful people.

We're so glad you found us!
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Old 08-19-2009, 01:13 AM #6
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene
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