Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

 
 
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Old 07-29-2014, 04:14 PM #6
Lara Lara is offline
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Join Date: Sep 2006
Posts: 11,026
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Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
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I'm really sorry. Having pain that bad in the ear would be more than horrible.

I hope the doctor you just saw can help you out.

I don't know anything about this condition but in searching I came across information regarding treatment options besides surgery and they mentioned Tegretol and Sansert.

I guess no 1 priority in getting the correct treatment is to find a doctor who will give you a diagnosis.

http://www.upmc.com/Services/neurosu...neuralgia.aspx

http://facial-neuralgia.org/conditions/tn-ni.html
This is old, but it helped me understand what you're dealing with there.

Perhaps you could also post on the Trigeminal Neuralgia Forum

The members there would be familiar with the different neuralgias and may have some suggestions for you.
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