Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

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Old 07-19-2008, 04:17 PM #1
jane d mccartney jane d mccartney is offline
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Wink occipital neuralgia

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Originally Posted by Nik-key View Post
Sorry to hear that Jamie. I had the MVD - they also enter through the skull at the back of the skull. I believe that is the reason the right side is so bad. When I use to have the nerve blocks I always needed an extra one right where the "plug" is. Gee thanks guys LOL


Hi Nik-key
thanks for your info on the patches , perhaps your hair is shorter than mine but will give them a go.
my o.c is being caused by 2 brain tumours inoperable, benign but causing me a lot of symptoms. jane mCc
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Old 07-22-2008, 05:23 AM #2
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Well, I'm guessing mine is from a car accident (whiplash).

Ellena
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Thanks Nikkey. I keep reminding myself that it could always be worse.

Ellena
I'm the same - my ON was caused by a car accident/whiplash - but the other lady in the crash came off much worse and I just keep reminding myself of that.

I've had a horrible few months - but I'm sure she's had much worse
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Old 07-22-2008, 08:21 AM #3
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Yes, things can always be worse. I read your other post regarding the nerve blocks - I'm happy to hear you are getting some relief. I'm waiting for insurance to approve pain management for mine so relief is still beyond my grasp.
Ellena
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Old 07-22-2008, 10:00 AM #4
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Yes, things can always be worse. I read your other post regarding the nerve blocks - I'm happy to hear you are getting some relief. I'm waiting for insurance to approve pain management for mine so relief is still beyond my grasp.
Ellena
I hope you find some relief soon Ellena.

Hugs
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Old 07-22-2008, 06:15 PM #5
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I hope you find some relief soon Ellena.

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Thanks Charliebubs. I called the NS's office today and will call again tomorrow. Its crazy that I need to wait this long.

Ellena
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Old 07-30-2008, 09:10 AM #6
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Thanks Charliebubs. I called the NS's office today and will call again tomorrow. Its crazy that I need to wait this long.

Ellena
Did you get anywhere with them yet, Ellena?
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Old 07-30-2008, 03:48 PM #7
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Thanks for asking, but unfortunately, the doc they were referring me to doesn't believe he can do anything for me so my chart was placed on the NS's desk and his assistant is waiting for further direction from him. I gave her a name of a doc to suggest to him so I'll call there tomorrow and see what he has decided. And, then they still need to get insurance approval and we are getting ready to go away for two weeks. I'm still dealing with pain and doing what I can, but its getting worse and lying down is only possible now without a pillow and my eyes are really giving me fits. I'm really getting discouraged here and starting to think I'll never get any relief (sorry I'm just feeling sorry right now cause I've got enough pain to deal with without this). I woke up with muscle spasms at 4:00 this morning in my neck and the doc is thinking that the muscles are so aggravated in my neck from the bulging disc that its inflaming the nerve.

I do hope your still doing well and I really appreciate you asking. Sorry I'm still so bummed out.

Take care, Ellena
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Old 08-08-2008, 12:02 AM #8
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Quote:
Originally Posted by jane d mccartney View Post
Hi Nik-key
thanks for your info on the patches , perhaps your hair is shorter than mine but will give them a go.
my o.c is being caused by 2 brain tumours inoperable, benign but causing me a lot of symptoms. jane mCc
Actually my hair is really really long.
What I do is cut the patch in very thin strips,
part the hair and place them. Its a bit of work, but it is worth it!
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Old 08-08-2008, 07:09 AM #9
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Quote:
Originally Posted by Nik-key View Post
Actually my hair is really really long.
What I do is cut the patch in very thin strips,
part the hair and place them. Its a bit of work, but it is worth it!
Ok, now this is a tip I can use!

They had a huge tendency to fall off my head... I ended up holding them in place by wrapping an Ace-bandage around by head (under the pigtails I had already put my hair in trying to get it out of the way).

Needless to say, I looked ridiculous. I could only use them when I was at home.
Alone.
Completely Alone.
I'll have to try out your tip. Thank you so much.
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Old 08-13-2008, 09:24 AM #10
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LOL I was trying to picture you in pigtails and ace bandage The things we do for relief! If you cut it into small enough pieces it should stay on your scalp. I just hold there for a little bit to make sure it sticks good.
I wear them on my face as well for TN, so I understand what you mean about not wanting to go out in public
Take care and let me know how it works for you~Nikki
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