Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

Reply
 
Thread Tools Display Modes
Old 08-08-2008, 12:02 AM #1
Nik-key's Avatar
Nik-key Nik-key is offline
Senior Member
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Nik-key Nik-key is offline
Senior Member
Nik-key's Avatar
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Default

Quote:
Originally Posted by jane d mccartney View Post
Hi Nik-key
thanks for your info on the patches , perhaps your hair is shorter than mine but will give them a go.
my o.c is being caused by 2 brain tumours inoperable, benign but causing me a lot of symptoms. jane mCc
Actually my hair is really really long.
What I do is cut the patch in very thin strips,
part the hair and place them. Its a bit of work, but it is worth it!
__________________
********************************************

More Than One Soul Dies In A Suicide

.

********************************************



.
Nik-key is offline   Reply With QuoteReply With Quote
Old 08-08-2008, 07:09 AM #2
Macophile's Avatar
Macophile Macophile is offline
Member
 
Join Date: Jul 2008
Location: MA, USA
Posts: 284
15 yr Member
Macophile Macophile is offline
Member
Macophile's Avatar
 
Join Date: Jul 2008
Location: MA, USA
Posts: 284
15 yr Member
Thumbs up

Quote:
Originally Posted by Nik-key View Post
Actually my hair is really really long.
What I do is cut the patch in very thin strips,
part the hair and place them. Its a bit of work, but it is worth it!
Ok, now this is a tip I can use!

They had a huge tendency to fall off my head... I ended up holding them in place by wrapping an Ace-bandage around by head (under the pigtails I had already put my hair in trying to get it out of the way).

Needless to say, I looked ridiculous. I could only use them when I was at home.
Alone.
Completely Alone.
I'll have to try out your tip. Thank you so much.
Macophile is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nik-key (08-13-2008)
Old 08-13-2008, 09:24 AM #3
Nik-key's Avatar
Nik-key Nik-key is offline
Senior Member
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Nik-key Nik-key is offline
Senior Member
Nik-key's Avatar
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Default

LOL I was trying to picture you in pigtails and ace bandage The things we do for relief! If you cut it into small enough pieces it should stay on your scalp. I just hold there for a little bit to make sure it sticks good.
I wear them on my face as well for TN, so I understand what you mean about not wanting to go out in public
Take care and let me know how it works for you~Nikki
__________________
********************************************

More Than One Soul Dies In A Suicide

.

********************************************



.
Nik-key is offline   Reply With QuoteReply With Quote
Old 08-30-2008, 09:42 PM #4
sparky08 sparky08 is offline
New Member
 
Join Date: Aug 2008
Posts: 1
15 yr Member
sparky08 sparky08 is offline
New Member
 
Join Date: Aug 2008
Posts: 1
15 yr Member
Default ON after TMJ Surgery

I had jaw surgery for severe TMJ. The surgeon feels that the TMJ was how I compensated for my facial structure. He believes everything is a result of a head injury probably in childhood. At any rate, I had bilateral dischectomies of my TMJ with Fat Graft. Came through surgery with RSD and what later became Occipital Neualgia. I am on Lyrica, Clexa and Ultram for nerve pain. Some of which has helped. The RSD has calmed down after 5 Stellate Ganglion nerve blocks. The ON, however, is never ending. I have had trigger point injections in my head neck and upper trap, sometimes they help, sometimes they don't. I've moved onto Epidural injections in c2/c3. The last round last week did not work at all and I went in yesterday (friday) at about a 9 pain level for the second round. If this round doesn't work, they said they would not do a third round. I'm wondering if anyone knows what's possibly next if this doesn't work? I'm scared to death that the steroids won't kick in. Right now the anesethtic has mostly worn off and my left side base of neck is killing me. I know I still have a few more days to wait for the steroids kick in...but I am out of patience with this whole thing. Can anyone tell me the next course of treatment beyond epidural injections? Thanks so much.
Geri
sparky08 is offline   Reply With QuoteReply With Quote
Old 08-13-2008, 03:18 PM #5
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
Smile janemcc

keep putting these srips on my face & they keep falling off
havn`t got time for head, with holding ones on my face, think i make pain worse with pressing these things in.
jane
jane d mccartney is offline   Reply With QuoteReply With Quote
Old 08-13-2008, 03:31 PM #6
Nik-key's Avatar
Nik-key Nik-key is offline
Senior Member
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Nik-key Nik-key is offline
Senior Member
Nik-key's Avatar
 
Join Date: Apr 2008
Location: NH
Posts: 1,733
15 yr Member
Default

sorry to hear that jane! The ones I get are very sticky and last for hours. Perhaps you could talk to your doctor about getting better ones? Or i know there is a special medical glue my sister uses, maybe that could work?
__________________
********************************************

More Than One Soul Dies In A Suicide

.

********************************************



.
Nik-key is offline   Reply With QuoteReply With Quote
Old 08-16-2008, 02:16 AM #7
Melina Melina is offline
Junior Member
 
Join Date: Mar 2008
Location: Adelaide, South Australia
Posts: 40
15 yr Member
Melina Melina is offline
Junior Member
 
Join Date: Mar 2008
Location: Adelaide, South Australia
Posts: 40
15 yr Member
Default

Wow there are so many storys here! mine is kind of a long one so here goes! i woke up about 2 and a half years ago with Bell's Palsy! (facial Paralysis on left side) and from that i have ended up with endless problems! i have got bilateral trigeminal neuralgia and occiptical neuralgia as a result of bell's i also have hemi facial spasms, hypercausis of the left ear (sensitive to all noise) and tmj as well, the bell's has cleared up i still have a droopy eye and chin when i get tired but otherwise i look normal! i am taking tegretol and having accupuncture for the pain, which are sort of working unfortunately i cant have any botox or surgery because otherwise i could get a paralysed face again it is too risky!

Low pain wishes to everyone!!!!
it was really interesting finding out how many different ways people have ended up with this horrific pain!

Mel
Melina is offline   Reply With QuoteReply With Quote
Old 08-17-2008, 01:02 PM #8
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
Smile vesitis patches

Hi Nic Key
done it !! it`s been the cream on my face so now i only cream 1/2 face
& they are sticking great. sorry won`t need your sisters glue.
jane
jane d mccartney is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Occipital Neuralgia Jaime_S General Health Conditions & Rare Disorders 16 03-07-2014 08:05 PM
trigeminal neuralgia Debbie Anderson New Member Introductions 3 09-30-2007 12:57 PM
Trigeminal Neuralgia? Jogo Social Chat 0 09-24-2007 08:07 PM
Trigeminal Neuralgia and MVD hburhani New Member Introductions 3 05-11-2007 12:29 PM
trigeminal neuralgia lexiathedragongirl Multiple Sclerosis 3 09-25-2006 12:01 AM


All times are GMT -5. The time now is 12:16 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.