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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
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#1 | |||
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Senior Member
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Quote:
What I do is cut the patch in very thin strips, part the hair and place them. Its a bit of work, but it is worth it!
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******************************************** More Than One Soul Dies In A Suicide . ******************************************** . |
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#2 | |||
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![]() They had a huge tendency to fall off my head... I ended up holding them in place by wrapping an Ace-bandage around by head (under the pigtails I had already put my hair in trying to get it out of the way). Needless to say, I looked ridiculous. I could only use them when I was at home. Alone. Completely Alone. ![]() I'll have to try out your tip. Thank you so much. ![]() |
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"Thanks for this!" says: | Nik-key (08-13-2008) |
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#3 | |||
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Senior Member
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LOL I was trying to picture you in pigtails and ace bandage
![]() I wear them on my face as well for TN, so I understand what you mean about not wanting to go out in public ![]() Take care and let me know how it works for you~Nikki
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******************************************** More Than One Soul Dies In A Suicide . ******************************************** . |
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#4 | ||
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New Member
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I had jaw surgery for severe TMJ. The surgeon feels that the TMJ was how I compensated for my facial structure. He believes everything is a result of a head injury probably in childhood. At any rate, I had bilateral dischectomies of my TMJ with Fat Graft. Came through surgery with RSD and what later became Occipital Neualgia. I am on Lyrica, Clexa and Ultram for nerve pain. Some of which has helped. The RSD has calmed down after 5 Stellate Ganglion nerve blocks. The ON, however, is never ending. I have had trigger point injections in my head neck and upper trap, sometimes they help, sometimes they don't. I've moved onto Epidural injections in c2/c3. The last round last week did not work at all and I went in yesterday (friday) at about a 9 pain level for the second round. If this round doesn't work, they said they would not do a third round. I'm wondering if anyone knows what's possibly next if this doesn't work? I'm scared to death that the steroids won't kick in. Right now the anesethtic has mostly worn off and my left side base of neck is killing me. I know I still have a few more days to wait for the steroids kick in...but I am out of patience with this whole thing. Can anyone tell me the next course of treatment beyond epidural injections? Thanks so much.
Geri |
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#5 | ||
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Junior Member
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![]() havn`t got time for head, with holding ones on my face, think i make pain worse with pressing these ![]() ![]() jane |
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#6 | |||
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Senior Member
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sorry to hear that jane! The ones I get are very sticky and last for hours. Perhaps you could talk to your doctor about getting better ones? Or i know there is a special medical glue my sister uses, maybe that could work?
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******************************************** More Than One Soul Dies In A Suicide . ******************************************** . |
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#7 | ||
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Junior Member
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Wow there are so many storys here! mine is kind of a long one so here goes! i woke up about 2 and a half years ago with Bell's Palsy! (facial Paralysis on left side) and from that i have ended up with endless problems! i have got bilateral trigeminal neuralgia and occiptical neuralgia as a result of bell's i also have hemi facial spasms, hypercausis of the left ear (sensitive to all noise) and tmj as well, the bell's has cleared up i still have a droopy eye and chin when i get tired but otherwise i look normal! i am taking tegretol and having accupuncture for the pain, which are sort of working unfortunately i cant have any botox or surgery because otherwise i could get a paralysed face again it is too risky!
Low pain wishes to everyone!!!! it was really interesting finding out how many different ways people have ended up with this horrific pain! Mel ![]() ![]() ![]() |
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#8 | ||
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Junior Member
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Hi Nic Key
done it !! it`s been the cream on my face so now i only cream 1/2 face & they are sticking great. sorry won`t need your sisters glue. jane ![]() |
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