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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
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#1 | ||
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My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs? Thanks Mindy |
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#2 | ||
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Mindy,
I haven't had an ablation at the C2/C3 level but have had facet injections which work fairly well. Now, years ago I was told I could have an ablation but my PM warned me that there could be ongoing or permanent pain. So, I never opted for any of it in my neck...had to have two fusions instead anyway because of bone spurs and herniations. However, I do know of people who have had the ablations done in their neck and did well. I can say that it can take awhile for the nerves to die back so to speak. But six weeks sounds a bit long. And who did the ablation? Since your girlfriend has conflicting reports about the pain generator it may be that she needs diagnostic injections OR to see a Neurosurgeon. I hope she can get some answers. The C2/C3 can be very, very painful. ![]() |
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#3 | ||
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I was just reading this & part about unable to sit at pc is something I relate to. Also, my job has required that I go on the road for many hours at a time and now I find just sitting in the car seems to make the ON worse. I wonder if others have this problem. All you people are making me feel so not alone-thanks. |
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#4 | ||
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painhead,
From what I understand women tend to have a head forward posture. I know I do. And that was what was killing me. So, I had to have my workstation adjusted; ergonomically correct. One thing that helped and after my fusions was wearing a soft collar while at the PC...still does. It is kind of a reminder when you have it on to sit correctly and does help to relax the muscles. And, well, my PM has said no desk work ever again. I CAN sit at the PC and type out a few posts but NEVER an all day thing. There was also a period of time where I traveled for 3 years but that was before any spinal issues. But I have no doubt it contributed to some of this. And driving or rather riding long distances was a killer. I never left home without my soft collar and a cervical pillow. It seemed just every little bump in the road killed me. But, no you are not alone. Besides the people I have met online there is only one other who had this and was a co-worker. We used to compare notes all the time and I remember many a time when she said she was just ready to plop her head down on her desk. It is so painful and so difficult to describe to people what it really feels like. ![]() Last edited by Kathi49; 11-13-2008 at 08:14 AM. Reason: Correction |
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#5 | ||
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#6 | ||
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lol - friend
Well, that's sort of the question. One doc said they needed to be removed, the other said no. So of course insurance wants to fight it. I am curious why they don't just remove spurs anyway? My other friend also has a spur on her heel and it causes probs with her tendons too.....why not just remove the cause instead of treating the symptoms it causes? Anyone have cryoneurolysis? quote"This technique uses extreme cold (minus 70-180 degrees F) to freeze nerves in an ice ball, thereby interrupting transmission along that nerve for up to 3 months. " ??? |
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#7 | ||
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I am new to this forum, just wondering if the pain from the ablation ever got better. I have heard conflicting information to wether this works or not? I am supposed to have a c2 ablation done and am worrying if it will just make the pain worse. What was your ablation for? Mine is for occcipital neuralgia been going on for 10 years. No-one seems to be able to help. Have tried all drugs, but make me feel to bad. Hope you are doing much better. |
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#8 | ||
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Junior Member
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Mindy, hi
I have occipital neruolgia the problem is the occipital nerve is swelled in the C2 area. The coating is off the nerve. I recently underwent the ablation of the ganglion on the left and right side. The burn was done for about four minuteson each side. The doctors told me that I might have to do it again and I am going back the 19 th. of september 2008. The first time the results were ..... for the first three or four days it was real good. but as time went on the pressure has returned and the pain is not as severe but is constant and my head still radiates and the neck pain has returned and my nerves in my legs are pulling again and it has been about four weeks and I am going back to have it done again. I would like to hear from someone who has done the decompression surgery . I would like to know where is a good place to have it done at. |
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#9 | ||
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I have just had one done last friday.... update snappy10 |
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#10 | ||
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my side affects are changing almost everyday to more problems or the same problems comming back. One thing is that I do not vibate on the left side so far....the ringing in my left ear has returned.....now ringing in both ears like before....this occipital nerve must be tough.....it has withstood 19 minutes of burn.... on each side........and still kicking...... I want to check out the decommpression surgery being done by dr.Jho or the same surgery being done at the university of pittsburg pa. check out the web site of dr. Jho on the C-2 decompression surgery.... I saw it on T.V. last week....My only recourse at this hospital is cut the nerve and that is not what I want to do next.....best wishes......snappy10 |
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