Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

Reply
 
Thread Tools Display Modes
Old 11-19-2008, 11:00 AM #1
charliebubs charliebubs is offline
Junior Member
 
Join Date: Jun 2008
Location: UK
Posts: 49
15 yr Member
charliebubs charliebubs is offline
Junior Member
 
Join Date: Jun 2008
Location: UK
Posts: 49
15 yr Member
Default

Hope the nerve block went well for you Jaime.

Thinking of you.
charliebubs is offline   Reply With QuoteReply With Quote
Old 11-19-2008, 09:37 PM #2
Jaime_S's Avatar
Jaime_S Jaime_S is offline
Member
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Jaime_S Jaime_S is offline
Member
Jaime_S's Avatar
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Default

Had my nerve block yesterday. It was nice not to feel any head pain for a few hours, but after he pressed on my neck in different places and my shoulders, and did these tests on my left arm, to test sensitivity and if I have any weakness in the arm and not just the nerve pain...it has mostly come good, thankfully. Today it all aches! lol
I've had 5 blocks now, and I've been lucky that they haven't cost me anything, but from now on I have to pay...I'm just glad I don't need them so often! lol

~Jaime~
__________________

.


My Poetry Site -
.
Jaime_S is offline   Reply With QuoteReply With Quote
Old 12-01-2008, 04:02 PM #3
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
Default nerve blocks

glad the blocks are helping you jaime, do you have facial pain?
i`m having my 15th nerve block in the morning, they certainly help the back of my head. but i have this awful trigeminiel pain in my face the nerve blocks don`t touch this. I am on so many drugs don`t think they can give me any more. how do you feel after for 24 hrs after your block & how long does your head remain numb[ excuse the pun]
love sophia
jane d mccartney is offline   Reply With QuoteReply With Quote
Old 12-01-2008, 07:33 PM #4
Jaime_S's Avatar
Jaime_S Jaime_S is offline
Member
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Jaime_S Jaime_S is offline
Member
Jaime_S's Avatar
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Default

So far, the block is helping. I don't have facial pain as in TN, but I do have some jaw pain. But I did have some dental work done last week, that took a while, and my jaw is still hurting from that.
With the nerve block, I feel numbness for 2-3 hours, then pain for the next 2 nights, when the numbness wears off, but the steroids usually kick in by the 3rd-4th day, after the 5th day, I usually feel good, with very little pain. My Neurologist believes my neuralgia may eventually go away, as it has lessened a bit over the last 2 years. But, it has always done that...it comes, then goes, then comes again! I'd like to believe him, but I don't think so! lol

~Jaime~

Quote:
Originally Posted by jane d mccartney View Post
glad the blocks are helping you jaime, do you have facial pain?
i`m having my 15th nerve block in the morning, they certainly help the back of my head. but i have this awful trigeminiel pain in my face the nerve blocks don`t touch this. I am on so many drugs don`t think they can give me any more. how do you feel after for 24 hrs after your block & how long does your head remain numb[ excuse the pun]
love sophia
__________________

.


My Poetry Site -
.
Jaime_S is offline   Reply With QuoteReply With Quote
Old 12-02-2008, 02:26 AM #5
prairiegirl's Avatar
prairiegirl prairiegirl is offline
Member
 
Join Date: Sep 2008
Location: Western Canada
Posts: 101
15 yr Member
prairiegirl prairiegirl is offline
Member
prairiegirl's Avatar
 
Join Date: Sep 2008
Location: Western Canada
Posts: 101
15 yr Member
Default

SO glad you are feeling better. THose nerve blocks certainly help, don't they? I had surgery 2 weeks ago now and it looks like it didn't work at all. I ended up having to see my GP on Friday last week because I was in so much pain I was crying and feeling really queasy. I could not get in to see my pain specialist-she was way over booked, so I was screwed.

My GP is great and while she didn't quite know what to do for me, she decided the best she could come up with was to put me on a high dose of oral steroids (prednisone) for 5 days and see if that made some of the swelling around the nerves go down and help the pain some. It seems to have, though I still have the ON headache going on. I am still taking hydromorphone and then sleeping pills because the steroids make me wired.

Supposed to see the pain specialist on Thursday and I imagine get another nerve block. I will probably be back to once a week injections again. Whoopie!

Where's our magic wands when we need them eh?

Anyway, sending you lots of understanding about how cruddy this is to deal with and again, so glad youw ere able to get your shot again.
prairiegirl is offline   Reply With QuoteReply With Quote
Old 01-01-2009, 08:41 PM #6
Jaime_S's Avatar
Jaime_S Jaime_S is offline
Member
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Jaime_S Jaime_S is offline
Member
Jaime_S's Avatar
 
Join Date: Apr 2007
Location: Bendigo. Victoria. Australia.
Posts: 497
15 yr Member
Default

Well, I had been 5 weeks pain free...then 2 days before christmas, I had this throbbing pain in the upper neck and the area where the block was done. I'm not sure if it is just nerve pain, only because it has never come on so quickly before, usually the block wears off gradually and the pain returns gradually...I think it is mostly muscle spasms in the neck! I still have this pain now, nearly 2 weeks later! Sitting here with my new laptop just makes it worse! lol Looks like it will be a trip to the Doctor soon...hopefully he's there next week!
__________________

.


My Poetry Site -
.
Jaime_S is offline   Reply With QuoteReply With Quote
Old 01-02-2009, 07:39 AM #7
Kathi49 Kathi49 is offline
Member
 
Join Date: Sep 2006
Posts: 519
15 yr Member
Kathi49 Kathi49 is offline
Member
 
Join Date: Sep 2006
Posts: 519
15 yr Member
Default

Jaime,

I am sorry to hear you are still having pain.

I want to ask you. What levels did the CT scan show the OA at it worst? I know you said OA is at every level. That tells me that it is probably facets and/or foraminal narrowing maybe Stenosis? And was the injection a trigger point injection so to speak? And do you have a copy of your CT report? I would try, if warranted, the facet injections based on what you have said. And I know those muscle spasms can be bad! Case in point...last spring it was everything I could do to get the spasms to stop and the sternocleidomastoid muscles were involved. I insisted my PM try trigger point injections at first. But at the time he said it was more than likely the facets. He went ahead and did the trigger points but the relief didn't last long at all. Dummy me! I was back in his office in no time flat and he went ahead and did the C2/C3 level. Well, he was right...I have had relief now for many months.

Over the years he has said many things but one thing he always told me and based on the way my neck is, that the pain would always come back and it did. The other thing was (and he has two fusions; myself as well) that he could never believe how those spasms just come on out of the blue. He now understands because it happens to him. And he kind of laughed at the time...said he has preached for years to stretch. Well, now he knows that sometimes stretching just doesn't get it. In any case, the way it was explained to me is that when the nerves are acting up, the muscles will spasm.

I hope you can get back in to the doc and get some relief. And watch the laptop. I know they are great for sitting and making life a bit easier. But if your head is in a forward posture or you are looking down, it can reallly aggravate things. And no offense intended at all. I talk to many spinal disorders folks who use nothing but laptops. I think I am the only one that uses a desktop instead. But unless my screen is right in front of me (ergonomically correct in other words) and my arms are resting, then I can't use a PC at all. A soft collar might help too. I put mine on when I feel spasms come on and it does help a bit; not a cure all...but reminds me in a way to keep my posture where it should be.
Kathi49 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
prairiegirl (01-09-2009)
Old 04-30-2009, 02:03 PM #8
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
jane d mccartney jane d mccartney is offline
Junior Member
 
Join Date: Jun 2007
Posts: 48
15 yr Member
Default occipital neuralgia

hi glad your`r back jaime
i`v been away sometime too
glad the nerve blocks are still working for you
i have my 15th the end of may, glad i don`t have to pay for these.
sorry abought the arm & hope it`s improving.
jane sophia
jane d mccartney is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
update on me, the dog, my dad.. PunkDizzle The Stumble Inn 9 02-26-2008 02:31 PM
Update on my son holhar Thoracic Outlet Syndrome 8 02-02-2008 09:48 PM
Update GreyHoundLover Reflex Sympathetic Dystrophy (RSD and CRPS) 3 12-19-2007 08:24 PM


All times are GMT -5. The time now is 04:40 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.