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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
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#1 | |||
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Had my nerve block yesterday. It was nice not to feel any head pain for a few hours, but after he pressed on my neck in different places and my shoulders, and did these tests on my left arm, to test sensitivity and if I have any weakness in the arm and not just the nerve pain...it has mostly come good, thankfully. Today it all aches! lol
I've had 5 blocks now, and I've been lucky that they haven't cost me anything, but from now on I have to pay...I'm just glad I don't need them so often! lol ![]() ~Jaime~
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#2 | ||
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Junior Member
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glad the blocks are helping you jaime, do you have facial pain?
i`m having my 15th nerve block in the morning, they certainly help the back of my head. but i have this awful trigeminiel pain in my face the nerve blocks don`t touch this. I am on so many drugs don`t think they can give me any more. how do you feel after for 24 hrs after your block & how long does your head remain numb[ excuse the pun] love sophia ![]() |
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#3 | |||
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So far, the block is helping. I don't have facial pain as in TN, but I do have some jaw pain. But I did have some dental work done last week, that took a while, and my jaw is still hurting from that.
With the nerve block, I feel numbness for 2-3 hours, then pain for the next 2 nights, when the numbness wears off, but the steroids usually kick in by the 3rd-4th day, after the 5th day, I usually feel good, with very little pain. My Neurologist believes my neuralgia may eventually go away, as it has lessened a bit over the last 2 years. But, it has always done that...it comes, then goes, then comes again! I'd like to believe him, but I don't think so! lol ![]() ~Jaime~ Quote:
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#4 | |||
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SO glad you are feeling better. THose nerve blocks certainly help, don't they? I had surgery 2 weeks ago now and it looks like it didn't work at all. I ended up having to see my GP on Friday last week because I was in so much pain I was crying and feeling really queasy. I could not get in to see my pain specialist-she was way over booked, so I was screwed.
My GP is great and while she didn't quite know what to do for me, she decided the best she could come up with was to put me on a high dose of oral steroids (prednisone) for 5 days and see if that made some of the swelling around the nerves go down and help the pain some. It seems to have, though I still have the ON headache going on. I am still taking hydromorphone and then sleeping pills because the steroids make me wired. Supposed to see the pain specialist on Thursday and I imagine get another nerve block. I will probably be back to once a week injections again. Whoopie! Where's our magic wands when we need them eh? Anyway, sending you lots of understanding about how cruddy this is to deal with and again, so glad youw ere able to get your shot again. |
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#5 | |||
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Well, I had been 5 weeks pain free...then 2 days before christmas, I had this throbbing pain in the upper neck and the area where the block was done. I'm not sure if it is just nerve pain, only because it has never come on so quickly before, usually the block wears off gradually and the pain returns gradually...I think it is mostly muscle spasms in the neck! I still have this pain now, nearly 2 weeks later! Sitting here with my new laptop just makes it worse! lol Looks like it will be a trip to the Doctor soon...hopefully he's there next week!
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#6 | ||
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Jaime,
I am sorry to hear you are still having pain. I want to ask you. What levels did the CT scan show the OA at it worst? I know you said OA is at every level. That tells me that it is probably facets and/or foraminal narrowing maybe Stenosis? And was the injection a trigger point injection so to speak? And do you have a copy of your CT report? I would try, if warranted, the facet injections based on what you have said. And I know those muscle spasms can be bad! ![]() ![]() Over the years he has said many things but one thing he always told me and based on the way my neck is, that the pain would always come back and it did. The other thing was (and he has two fusions; myself as well) that he could never believe how those spasms just come on out of the blue. He now understands because it happens to him. And he kind of laughed at the time...said he has preached for years to stretch. Well, now he knows that sometimes stretching just doesn't get it. In any case, the way it was explained to me is that when the nerves are acting up, the muscles will spasm. I hope you can get back in to the doc and get some relief. And watch the laptop. I know they are great for sitting and making life a bit easier. But if your head is in a forward posture or you are looking down, it can reallly aggravate things. And no offense intended at all. I talk to many spinal disorders folks who use nothing but laptops. I think I am the only one that uses a desktop instead. But unless my screen is right in front of me (ergonomically correct in other words) and my arms are resting, then I can't use a PC at all. A soft collar might help too. I put mine on when I feel spasms come on and it does help a bit; not a cure all...but reminds me in a way to keep my posture where it should be. |
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"Thanks for this!" says: | prairiegirl (01-09-2009) |
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#7 | ||
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Kathi,
I'm so glad you posted your experience. The muscle spasms I had came out of the blue while I was asleep and they were associated with the bulging disc I have at C5-6. I totally understand what you say about no amount of stretching helps as I stretched plenty before, and tried to after, without any success. Anyway, your description just validated my experience. ![]() |
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#8 | |||
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Hi Kathi,
Yes, I have a copy of my CT report, and I showed it to my Neurologist last time I saw him. All he said was... "It's not bad really, I've seen worse spines than yours, and as recently as this morning"! The summary of the report said..."Minor disc bulges are as described, without significant canal stenosis or foraminal narrowing". I don't think it's too bad, either, there are a lot worse than me out there! The only injections I've had are for the occipital nerves, never had any facet joint injections. I just have pain down one side, and my neck muscles are always tight. I usually get massage therapy every 2 weeks, which usually relieves the tension and pain, but my massage therapist is away at the moment, and I can't get to see him until late next week. I've often had muscle tightness and spasms in the neck, but they usually only last a day or 2. Bu this has lasted nearly 2 weeks! As for the laptop, I never have it on my lap (no room on my lap anyway! lol) I use it on a small ajustable table, but can't quite get it as high as I'd like, so it's sitting on a book as well now! lol I still use my old desktop PC, (I'm using it now!). But I wanted something portable so I don't have to be stuck in this small stuffy room all the time! I used the laptop over christmas, as I had my brother sleeping in the room where my PC is! Anyway, I'll work it all out eventually! lol I'm limiting my time on any computer right now...gotta get a life! lol ![]() ~Jaime~ Quote:
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"Thanks for this!" says: | Burntmarshmallow (01-03-2009) |
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#9 | ||
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Junior Member
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hi glad your`r back jaime
i`v been away sometime too glad the nerve blocks are still working for you i have my 15th the end of may, glad i don`t have to pay for these. sorry abought the arm & hope it`s improving. jane sophia |
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