Well, Saturday was the breaking point for me and landed in the ER. I literally thought this is it, I'm dying. i'm having a stroke or something.
Anyway, they pumped me with an IV of Valium for my muscles. I couldn't move my neck and my head felt like it was going to explode and pour out of my ears. It was the worst by far.
Anyway, the ER doctor prescribed valium for my muscles plus a new drug, indometrhacin, which is usually used for gout. He said that since the prednisone helped but I can't take it continually as well as I can't stay on Motrin because it caused a serious rebound effect for me, this might be the trick.

So now my meds are as follows...geez. I feel like a walking drug store.
6 am
300mg Neurotin
20 mg Baclofen
1 Indomethacin
1030 am
300 mg Neurotin
noon
20 mg baclofen
1 Indomethacin
230 pm
300 mg Neurotin
6pm
1 Indomethacin
600 mg Neurotin
20 mg Baclofen
8pm
10 mg Valium

Now I am telling you all this because it seems to be effective so far.
i do have the burning on the back of my scalp but not too bad, its managable. My neck is feeling much better since starting the valium
I cannot tolerate 600 mg Neurotin at noon so breaking it up helps alot.
The Indomethacin seems to reduce the pressure in my head.
The pharamacist was awesome and came out and talked about all 4 meds and how she was shocked at the mix because it came from 3 different doctors but said together this was an awesome mix and not one that is usual. All four work differently but can target all the issues that could causing the Occipital Neurolgia.

Perhaps this could work for some of you guys? None of them are serious pain killers but are working to target the issue instead of masking the pain. I hope this helps for you guys.