Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)

 
 
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Old 05-27-2009, 11:33 AM #28
charliebubs charliebubs is offline
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Join Date: Jun 2008
Location: UK
Posts: 49
15 yr Member
charliebubs charliebubs is offline
Junior Member
 
Join Date: Jun 2008
Location: UK
Posts: 49
15 yr Member
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Hi everyone,

Sorry to thread-jack EE.

Firstly - how are you doing now after the RF?

I had RF lesions (which I guess is the same thing as ablation, we just name it differntly in the UK!) to the occipital nerves bilaterally 8 days ago.

I feel worse at the moment than I did before

My head is so sore, both to the touch and internally (if that makes sense). Today I have had a really bad day - hence coming back to the forum here. My head almost feels too heavy to keep up and I struggle to find a comfortable position. If I can sit supporting my head, then it's better.

EE - I know you said that pain was worse initially after RF for you too - did that pass? How long did that take, if so? Have you had a lasting pain-free period now?

My specialist said that this would work for 12-18 months for me. He did say that the nerves may regenerate before that time is up and the procedure may have to be repeated.

I had 3 lots of steroid/local anaesthetic nerve blocks before this and they did have an almost instant relief (although it didn't last long - the longest was 10 weeks) and I was hoping for the same instant relief with this procedure. I can't believe I feel worse. It's so depressing.

Any words of comfort would be good
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