[CarolynS]

So nice to be here again. I do need to vent a bit about PD!!

So, I am at my daughters this evening and she had to meet with some people at 5:30pm that oversee my autistic grandson's services. I figured, three kids would appreciate not having to wait until 7pm to eat dinner.

So, I began to cook. Nothing difficult. A couple of boneless chicken breast, broccoli in the microwave, potatoes. I thought I could do it without any difficulty, but NOOOO!!

Between the sweating and the tremor it was misery for me. The kids got a good hot meal, but grandma was done in!!

If there is one thing I hate about PD, it is the tremor. Some days I can hardly write anything. The least exertion...just going shopping for groceries, causes me to sweat so bad it drips onto my glasses, my hair is wet. I am sick and tired to both issues.

Thanks for listening,
Carolyn

[Floridagal]

Originally Posted by digger

So nice to be here again. I do need to vent a bit about PD!!

So, I am at my daughters this evening and she had to meet with some people at 5:30pm that oversee my autistic grandson's services. I figured, three kids would appreciate not having to wait until 7pm to eat dinner.

So, I began to cook. Nothing difficult. A couple of boneless chicken breast, broccoli in the microwave, potatoes. I thought I could do it without any difficulty, but NOOOO!!

Between the sweating and the tremor it was misery for me. The kids got a good hot meal, but grandma was done in!!

If there is one thing I hate about PD, it is the tremor. Some days I can hardly write anything. The least exertion...just going shopping for groceries, causes me to sweat so bad it drips onto my glasses, my hair is wet. I am sick and tired to both issues.

Thanks for listening,
Carolyn

Boy, ain't it the truth, I'm mad too, ALOT. I guess I go in & out of those stages, anger, denial, bargaining, depression, acceptance but the anger frequently is the one I most identify with, less wimpy, speaks to my streak of defiance. whenever I get those shakes (often) & am trying to do something I feel both sad & furious. probably I should mellow & but the chemistry of the illness makes it feel impossible. And the Feelings, oh my, I hardly cried before this illness and now there are days when I can't turn off the faucet. it couldn't have been healthy all those years to have been so stoic, but somedays I wonder where the old me went! Thanks much for shaing & I wish I was there last night cause maybe we could have taken turns cooking and resting. Be encouraged, FG

[CarolynS]

FG, I know what you mean about the fluctuating emotions!!

What I didn't say though was that this was the first time in my daughter's home since May. I had reconstructive foot surgery on May 20th after returning home from the NIH the day before. From that day until July 6th (week 14) I was housebound (I live alone) and was dependent on visiting nurse to do things we all normally take for granted; e.g. groceries, sweeping the floor, taking out the garbage.

So, I am now on two feet, sort of, and was doing something that was normally problematic, but yesterday was doubly so. I sit here this morning scolding myself for stupidity!

I just started the 3/4 months of physical therapy required to re-teach this foot to walk again.

Carolyn

[Bob Dawson]

Originally Posted by Floridagal

Boy, ain't it the truth, I'm mad too, ALOT. I guess I go in & out of those stages, anger, denial, bargaining, depression, acceptance And the Feelings, oh my, I hardly cried before this illness and now there are days when I can't turn off the faucet....... I wish I was there last night cause maybe we could have taken turns cooking and resting. Be encouraged, FG

Loving the part about PWP taking turns cooking and resting. That is actually going on.

The symptoms - I say 100 times worse than other people but it may be a thousand times more, but that sounds scary. Crying a lot? The Mysterious Anuket once came out with a crying scale from 1 to 10. I don't remember exactly, but number one on the scale was gentle tears running down your face; 10 was an all-out, writhing on the floor, crying and screaming and howling in wave after wave. And Parkinson's takes you there any old time at all.
So people ask me about the symptoms, and I tell them they all have the same symptoms as me. But Parkinson's makes mine 100 times worse, and in waves and sequences that I cannot predict.
Mr. and/or Ms. Normal, did you ever have trouble sleeping? Did you ever feel like throwing up? Did you ever have sore joints? Did you ever forget where you parked your car? Did you ever burst out crying when everybody else was just fine? Did you ever say that was a great movie and your friends all hated it? Did you ever feel really really tired? Did you ever feel very weak? Did you ever have too much of one thing and not enough of the other; so you change the timing of the doses and end up just as bad, with too little of the one that was too much and too much of the one where you had to little.
Mr. and/or Ms., there is nothing mysterious about our symptoms. You have all of them too. The mystery is how come ours explode at 100 times the usual octane?
Did you ever cry and not know why? Maybe a level one or two on the Anuket Scale of Weeping; maybe a level ten if your husband or dog just died, but Parkinson's will take you all the way to ten in just a few seconds, for no particular reason, and there you are, lying on the floor weeping and howling again, at hurricane force 10.
It can make life very hard for us, but, and this is not much of a consolation, but still ----- it's not boring. Just doing a simple task can turn into an expedition to climb Mt. Everest, and we are the ones always rolling back down the hill.

[indigogo]

shaking, sweating, weeping, sleeping - yep! that about covers it for me, too!

[jeanb]

Carolyn, my tremor isn't as bad as yours - but i hate it hate my tremor so much! I empathize with you and what you are going through.

Jean

[CarolynS]

This Sunday I have to sign three certificates at church, since I lead the RE program. I am hoping that I can have someone else do the signing for me. I don't have a signature...who on this list does?...let alone one that would look nice on a document of this kind. I have always appreciated that my fine stitching has helped me maintain a reasonable level of dexterity and ability to still type, but even this is beginning to be effected.

I just get so ANGRY when I drop things these days...cuss and cry or cuss and yell! Which is far too often. It was especially frustrating while I was on a walker for all those weeks. Now I am on one crutch and...well, lets just say that I now have ZERO-TOLERANCE for my tremor!

I appreciate the para-transit system we have here, but at the same time I hate it.

I am off to Baltimore for a foot surgery appt. Everyone have a GREAT day!!

[jeanb]

I hope your foot surgery appt went well!

jean