These "professionals" know nothing about the hell we live with. Thanks for the post about this physician. seems like he might actually care more about people than his reputation. The days I spend lately are of increasingly poor quality despite listening to the "all knowing" MD, & following ineffective advice, med protocals, DBS. I have heard celebrity talk about how "great" They are doing, & wonder what they do that escapes me. Where is the secret to living "well" with this. All the hoopla about the cure in 5 years, what a joke. I'm sorry to be such a downer but I am too tired to be positive. The hope is just not realistic anymore & I have had more than enough. To those drs who won't even consider something new I say, who are you to play god??? How dare you for being so rigid & so convinced you are right. you'd better hope like hell you don't get this, because if you do, you too will join us. you'll look around & listen to a bunch of nonsense being spewed as fact & be totally powerless over your own fate...