I am a 76 yr old male who was diagnosed with PD in 2003. I was also told that I've had a couple of strokes (which I didn't feel). Non the less, I have been experiencing a progressive speech impairment and involuntaring tongue thrusting since 2005 which prevents me from being understood. I have minimal shaking of the hand. The neuro said that the tongue thrusting can be treated but will make the PD worse. Has anyone experiened the same?Thank you.

Lou,

I'm sorry that no one's replied to you about this or your previous post. That doesn't mean that we don't care. It's just that no one who has logged on has any useful advice. I think it would help if you gave a specific diagnosis, were the "mini" strokes the cause of your Parkinson's symptoms, what meds are you on?

John

John, thanks for the answer. I was diagnosed with PD in 2004. According to a neuro in 2004 (after a brain MRI) I had a stroke and 2 TIA's, which I never felt. However, he said that the stroke had nothing to do with the PD. The PD perhaps came about from head trauma.
Presently I am having a hard time with the tongue constantly thrusting (oral buccal dyskinesia?) which impedes my speech, ablity to chew and swallowing. The meds I presently take for the PD is 2 tabs of Carbidopa-Levo 25/100 3X a day. Other meds are for blood thinning, cholesterol, arrhythmias, BP and sleep. A neuro said that there is treatment for the dyskinesia but it would make the PD much worse. Has anyone out there experienced similar conditions and if so, was it reversed? Thanks...

Can't think of anything that might help the tongue thrusting...sounds miserable and I am so sorry you are experiencing this...surely there is something that could help and I will do some research. God bless you. ..and welcome to the forum Aunt Bean

Thank you for caring...
Lou

Lou,
I am presuming that you have already looked online for answers to your problem. I followed up some related dystonis/dyskinesia type conditions to something called Meige's syndrome, and botox is mentioned. It is a wiki, so it isn't necessarily accurate information, but if you haven't read it before here is the link:

http://en.wikipedia.org/wiki/Meige's_syndrome

At the end it has these words: Palliative treatments are available, such as Botox injections.

If you think this article reflects some of what your condition is, and this has never been offered as an option, perhaps you could discuss it with your neuro to see what he says. it may not be appropriate, of course, in which case I apologise in advance.

There are also some 'distraction' techniques discussed.

Lindy.

Lindy, thanks for the info. I've had Botox Injections before but they can cause a swallowing problem. Regarding Botox for the involuntary tongue thrusting, there are a lot of nerves in the tongue and to hit the precise one (s) is chancey. Thanks again for the interest, I really appreciate it.

Lou

check out Remedies for Parkinson's disease under:
http://www.tbyl.com click remedies and then Parkinson's disease. Some of the herbs and supplements listed may be worth a try for you. God Bless

Thanks, but couldn't find "remedies" in the web-site. God Bless.

Lou

Aunt Bean, I got the web-site (http://www.tbyil.com) and it is very interesting... Thanks a lot...

Lou