Parkinson's Disease Tulip


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Old 04-09-2013, 03:26 AM #31
Bob Dawson Bob Dawson is offline
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http://www.alltrials.net/

OUR AIM IS TO GET ONE MILLION SIGNATURES
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Old 04-25-2013, 03:59 PM #32
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Default Bumping it up one last time, for Cecil

For Cecil

I made a solemn vow, in the dark,
standing between you and the stream;
I decided right then and there, that you would be heard.

This thread is for you.

You left the kitchen door open and the wind bent it from its frame.

You opened a door
that can never be closed again.

Something good will come this way.

If not today,
Then maybe tomorrow.
Maybe tomorrow.

Bob
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Old 04-28-2013, 06:45 AM #33
1dkramer 1dkramer is offline
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Default Douropa pump

Any news about the pump? It is getting harder and harder to build my best friends feelings up. She what's this so bad. She keeps on saying it will never happen. I was telling her about all the positive news on this site but she is getting more depressed. I asked her doctor if there was any news, but he dose not like the pump, and I find it funny because he is very involved with many Parkinson's testing at the u of Penna. and he turned it down to test. Please let me know what you think.
Thanks
Dina
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Old 04-28-2013, 09:42 AM #34
Bob Dawson Bob Dawson is offline
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I have not heard a word about yesterday’s Parkinson’s Unity Walk in Central Park in NYC, so I assume that a jolly good time was had by all and and there was no product launch and no questions were asked at the AbbVie booth.

It’s what scientists call “Parkinson’s apathy” or “Parkinson’s lethargy”;
it goes together with the face becoming a mask.
The silence of the lambs.
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Old 04-28-2013, 09:53 AM #35
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Default Bob Dawson

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Originally Posted by Bob Dawson View Post
I have not heard a word about yesterday’s Parkinson’s Unity Walk in Central Park in NYC, so I assume that a jolly good time was had by all and and there was no product launch and no questions were asked at the AbbVie booth.

It’s what scientists call “Parkinson’s apathy” or “Parkinson’s lethargy”;
it goes together with the face becoming a mask.
The silence of the lambs.
Thank you letting me know, I looked at NY times this morning but it said notting about any the event yesterday.
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Old 04-30-2013, 02:08 PM #36
Bob Dawson Bob Dawson is offline
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Default Duodopa job offer cancelled

DUODOPA ACCOUNT EXECUTIVE, EDMONTON
Posted APRIL 4, 2013
AbbVie (NYSE:ABBV)

This position must be based in Edmonton and requires a degree; Nursing or Medical
The Duodopa Account Executive serves as the liaison between the Specialty Products Division - Neurosciences Business Unit and key Movement Disorder Centers, Movement Disorder Specialists and Neurologists:
….developing and maintaining multi-level relationships with targeted Movement Disorder Centers to increase education on product benefits/risks… develop new business, increase sales and market share aimed at achieving sales plan for Duodopa.

Delivers effective presentations resulting in sales quota achievement.
Serves as lead contact with targeted MDCs/MDSs in assigned geography and collaborates with AbbVie colleagues including Marketing, Market Access, Patient Relations, and Medical …

Creates, implements and communicates strategic and tactical plans with Commercial team for targeted MDCs. Facilitates the establishment of new Center of Excellences for Duodopa as reimbursement expands throughout Canada in collaboration with commercial leadership ..

Maintains adherence to all company policies and OEC/Legal procedures.
AbbVie Neuroscience Business Unit and our Center of Excellences will provide care for PD patients to receive Duodopa..

Establishes and demonstrates thorough understanding of business negotiations and necessary contracting process, reimbursement, and other drivers impacting the customer environment. Ability to effectively develop contacts to establish Center of Excellence hospitals/clinics, as well as initiate/facilitate P&T committee product reviews (or like processes within hospitals) including having Duodopa listed on hospital formularies where procedures will be done.

Leverages opportunities to understand customer needs and partner with customers. Builds strong relationships that provide market intelligence …
Minimum 3 years of experience in nursing, sales management, account management, clinical research and/or marketing experience in a healthcare business; account management, market access knowledge and experience in the Neuroscience is important.

Strong business acumen;…. define account/program strategies that drive business objectives.

UPDATE April 29, 2013
Job posting no longer exists!
DUODOPA ACCOUNT EXECUTIVE, EDMONTON (AB-Field)

We apologize, this job posting is no longer available as it was recently removed from the originating site.
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Old 04-30-2013, 02:44 PM #37
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Default opinion on drugs

Bob, I went to Canada, where at least the Government bargins with the drug companies. In the states, things are every so much worse, because the pharma companies are in cahoots with goverment and pay for much of our elections. Transparancy in cost, effectiveness, evidently isn't in there adgenda. My medications in Canada, were resonable, down here, some so expensive, there is no hope I could afford them. Insuance also will not pay for them. I think it is this way with all medications, especially ones that are life saving. I sure wish things could be different. You who suffer with PD should have the opportunity to try these meds that could help you. ginnie
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Old 04-30-2013, 03:57 PM #38
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Default My Goodness

Quote:
Originally Posted by Bob Dawson View Post
One pill makes you larger
The other pill makes you small
And the ones that the doctor gives you
Don't do anything at all
Go ask Alice
When she’s 10 feet tall

“Here we go back down the rabbit hole,” Paula W. and her co-conspirators used to say on the NeuroTalk Parkinson’s Forum.

About Amgen in the GDNF debacle.

About Merck and the deliberate sinemet shortage.

About the system of triage that was obviously in place, but denied.

And the inexplicable 10 year delay in getting duodopa across the Atlantic, Abbvie and its predecessor repeatedly promising and not delivering; and explaining none of it.

The inexplicable refusal (industry-wide) to publish half of the medical studies – the studies that are negative are jettisoned –

About the inexplicable refusal to provide data even on the positive studies,

And at all times, the inexplicable silence of the lambs.

When logic and proportion
Have fallen sloppy dead
And the White Knight is talking backwards
And the Red Queen is off her head

Back down the rabbit hole, into the mysterious Parkinson’s Nether World.
That’s where we stand today with Abbvie and duodopa. What happened in the past 10 years? What’s the narrative? What’s the frequency, Dave? The FDA got your tongue? And what comes next? Triage again? Better than nothing, but why are the patients the only ones kept in the dark about the multi-billion dollar industry that grew up around our disease?

Whether it be Amgen or Merck or Abbott or others, when we ask simple questions about the decisions being made, decisions that for us may mean life or death, the response is that it’s none of our business. It’s “proprietary information.”

It is no longer Parkinson’s, it is now Parkinson’s™.

It’s none of your business, you hear? Now take your pills, sit in the chair and stare at the wall. That’s all you need to know.

When the men on the chessboard
Get up and tell you where to go
And you've just had some kind of mushroom
And your mind is moving slow
Go ask Alice
I think she'll know

FOLLOW ALICE DOWN THE RABBIT HOLE: (as per Walt Disney)

http://youtu.be/tOyasacx9vQ
3 Skeptics about big pharm etc in one site???? Ive died and gone to heaven. Sheep ye r not.

Peace BP drug free and haaaappppyyyyy.
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Old 05-01-2013, 05:10 AM #39
Bob Dawson Bob Dawson is offline
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Default Until next April

So Parkinson’s awareness month is over, and what are you aware of today that you were not aware of a month ago?

Hey, I hear that Duodopa has been fast-tracked and will be available in 6 months! Isn’t that great news!

And those lawsuits launched by AbbVie to suffocate information about their research? Well they don’t want another situation like Depakote, where the studies showing the drug was useless somehow got sneaked out to the public after being hidden for four years, and then some court declared it to be criminal, and so on. I mean, really, such a fuss and bother just because the medical evidence was deliberately falsified, and some nasty judge declared it was criminal and they had to pay a $500 million fine to criminal court, which of course drives up the price of the drug.

Well none of that will happen to People with Parkinson’s, because we made AbbVie our good true friend and Proud Partner.

Now take your pill, sit in the chair, and stare at the wall. You have had more than enough Parkinson’s Awareness to last you until next April.
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Old 05-01-2013, 09:08 AM #40
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Default soooo right!

Quote:
Originally Posted by Bob Dawson View Post
So Parkinson’s awareness month is over, and what are you aware of today that you were not aware of a month ago?

Hey, I hear that Duodopa has been fast-tracked and will be available in 6 months! Isn’t that great news!

And those lawsuits launched by AbbVie to suffocate information about their research? Well they don’t want another situation like Depakote, where the studies showing the drug was useless somehow got sneaked out to the public after being hidden for four years, and then some court declared it to be criminal, and so on. I mean, really, such a fuss and bother just because the medical evidence was deliberately falsified, and some nasty judge declared it was criminal and they had to pay a $500 million fine to criminal court, which of course drives up the price of the drug.

Well none of that will happen to People with Parkinson’s, because we made AbbVie our good true friend and Proud Partner.

Now take your pill, sit in the chair, and stare at the wall. You have had more than enough Parkinson’s Awareness to last you until next April.
Well said BOb! as per usual I must say. Loved spending a year reading your posts and back posts! I only know your electronic personification but LOVE it!
you the man.......

"Do things wu-wei, by doing nothing. Achieve without trying to achieve anything-savour the taste of what you cannot taste." (Taoist Zen Term)
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