Parkinson's Disease Tulip


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Old 12-10-2013, 08:16 PM #2
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
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reverett123 reverett123 is offline
In Remembrance
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Join Date: Aug 2006
Posts: 3,772
15 yr Member
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Good to hear from you Steve. I restarted my own experiment from several years ago just about four weeks back. I had not intended to go public with it for awhile, but "What the hell?" as they say. We might even fan the flames under an entirely new generation of Stealth Rodents once they begin to realize that this actually works!

And works, it do! I think that we should, as a group, chew this minor miracle up and determine its limits and identify any perils that we can find. And we must figure out how to use it and then get that info out into the ParkiSphere or whatever.

We should do this with the next creative collaboration in mind and show that a neglected rat can take his fate into his own hands if pressed. The stereotype of the weak but determined PWP taking Life by the throat can be very powerful. Heck we may start a revolution or a plot or a conspiracy or something.

OK. Enough of raging at Heaven - time to get to work. I propose that we at least consider trying to mimic how the "Gluten Files" were treated as a unit that could be swiftly deployed where wanted <Note that that is my observation and not that of the "curators" of those files and so I may be talking out of the ole' megaphone here.> My point is that we can be rats of distinction simply by keeping good records.

The importance of the DXM is not to be underestimated. It not only works, it does so on multiple levels! By this I mean that it does, indeed, put the brakes on PD (as well as a host of other disorders), it also works on the symptoms that rob us of so much of our lives. It makes me stronger, especially in my lower legs. Nothing else worked as months went by. But then DXM came to town. My legs feel stronger every day. There needs to be another option in that bag of tricks that we are handed at the neuro's office along with his diagnosis. The one that I was given extolled the wonder of the new miracle drug "Requip" and featured faux - elderly sex machines playing tennis while they rested between trysts. Or at least that is the message I received.

DXM, properly investigated and reported, can add another and even more important tool to our bag. And it has a dozen different functions that we can tap into. When we are asked for our advice for initial treatment it may be that we can direct our new litter-mates to DXM. We already have RLSmith as an example of halting PD and we have Steve for an average Joe benefitting from taking charge of the drug instead .


Quote:
Originally Posted by stevem53 View Post
I was taking 1/2 teaspoon of DM cough medicine from 2006 - 2008 for neuro protective purposes

I don't know if I got any neuro protection from it or not, but it did have a positive effect on my symptoms..I started taking my first dose at bedtime, and the next morning I felt really good..My symptoms started in my right leg, and that is where my dyskenisia started in the later years..I did not have dyskenisia back in 2006 - 2008

Anyway, I was saying how great I felt the next morning after my initial dose of DM..I was able to slip my right foot intro my shoe without touching it with my hand..It had been a few years since I had been able to do that, and it at first I was skeptical..Was it the DM or was it a fluke?..Well that continued for quite a while, so there is no doubt in my mind that DM was helping to manage my symptoms

Five days ago I had been sick and tired of dyskenisia, and there was a thread around here recently about DM and dyskenisia, so I decided to give DM another try, to see if it would tone down my dyskenisia..So I took a between a half and a whole teaspoon in the morning after meds, and take the same in the late afternoon..My plan was to take the DM before my meds kicked in, in the morning, and before I went off in the evening, because that is when I get dyskenetic..

So the results of this experiment are, reduced dyskinsia, as well as shorted intervals of dyskenetic episodes..I was having serious problems with freezing..I would be getting close to my kitchen table, and I would freeze..About to pass through a doorway and freeze..Narrowing passages, and freeze..My cell phone would ring, and if it wasn't in my pocket, I would freeze in anticipation of not being able to get to it in time, and sometimes it would only be 20' away..It seemed, the more urgent the situation, the worse the freezing got..My whole body feels weak when I go off, and my legs ache when I freeze, or take half steps to try to get from destination "A" to destination "B", and when I get moving the aching goes away..The past two nights I actually felt like the DM prolonged the effects of the Stalevo, beacuse I felt like I was still somewhat on after the evening dyskenisia, when I should have been off

My drug regimen hasn't changed in a while.So if I take my meds on time, 99 out of 100 times, I get the same results, so the DM is definately doing something

The question is....How long this last?..I will post updates occasionally




Quote:
Originally Posted by stevem53 View Post
I was taking 1/2 teaspoon of DM cough medicine from 2006 - 2008 for neuro protective purposes

I don't know if I got any neuro protection from it or not, but it did have a positive effect on my symptoms..I started taking my first dose at bedtime, and the next morning I felt really good..My symptoms started in my right leg, and that is where my dyskenisia started in the later years..I did not have dyskenisia back in 2006 - 2008

Anyway, I was saying how great I felt the next morning after my initial dose of DM..I was able to slip my right foot intro my shoe without touching it with my hand..It had been a few years since I had been able to do that, and it at first I was skeptical..Was it the DM or was it a fluke?..Well that continued for quite a while, so there is no doubt in my mind that DM was helping to manage my symptoms

Five days ago I had been sick and tired of dyskenisia, and there was a thread around here recently about DM and dyskenisia, so I decided to give DM another try, to see if it would tone down my dyskenisia..So I took a between a half and a whole teaspoon in the morning after meds, and take the same in the late afternoon..My plan was to take the DM before my meds kicked in, in the morning, and before I went off in the evening, because that is when I get dyskenetic..

So the results of this experiment are, reduced dyskinsia, as well as shorted intervals of dyskenetic episodes..I was having serious problems with freezing..I would be getting close to my kitchen table, and I would freeze..About to pass through a doorway and freeze..Narrowing passages, and freeze..My cell phone would ring, and if it wasn't in my pocket, I would freeze in anticipation of not being able to get to it in time, and sometimes it would only be 20' away..It seemed, the more urgent the situation, the worse the freezing got..My whole body feels weak when I go off, and my legs ache when I freeze, or take half steps to try to get from destination "A" to destination "B", and when I get moving the aching goes away..The past two nights I actually felt like the DM prolonged the effects of the Stalevo, beacuse I felt like I was still somewhat on after the evening dyskenisia, when I should have been off

My drug regimen hasn't changed in a while.So if I take my meds on time, 99 out of 100 times, I get the same results, so the DM is definately doing something

The question is....How long this last?..I will post updates occasionally
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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