Parkinson's Disease Tulip


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Old 03-13-2014, 11:12 AM #1
Muireann Muireann is offline
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Default Relief was in the supermarket for glen pettibone

http://www.blogtalkradio.com/parkins...glen-pettibone
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Old 03-13-2014, 12:57 PM #2
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Thanks for the link...it was excellent !
great to see he got way better with a diet with food rich in Nicotine
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Old 03-13-2014, 02:25 PM #3
soccertese soccertese is offline
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all i ask from these people that claim they reduced their symptoms is just prove their diagnosis and what pd meds they were taking. it's not difficult to get your medical and pharmacy records. how about a before and after video?

i've tried eating hot peppers, drank cherry juice, blueberry juice and felt nothing. cherry juice did help me sleep just a little because of the melatonin but no better than OTC melatonin.

boy, just a lot of pseudo science here.

if he wanted a little nicotine why not just snip off a small piece of nicotine gum and chew it with a regular piece of gum?

sure doesn't sound like he got much nicotine compared to villiers.


he says he's currently taking meds for E.T., never said he had any rigidity. huh?

Last edited by soccertese; 03-13-2014 at 02:41 PM. Reason: added ET MEDS blurb
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Old 03-14-2014, 11:27 AM #4
MeAndPD MeAndPD is offline
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Quote:
Originally Posted by soccertese View Post
all i ask from these people that claim they reduced their symptoms is just prove their diagnosis and what pd meds they were taking. it's not difficult to get your medical and pharmacy records. how about a before and after video?

i've tried eating hot peppers, drank cherry juice, blueberry juice and felt nothing. cherry juice did help me sleep just a little because of the melatonin but no better than OTC melatonin.

boy, just a lot of pseudo science here.

if he wanted a little nicotine why not just snip off a small piece of nicotine gum and chew it with a regular piece of gum?

sure doesn't sound like he got much nicotine compared to villiers.


he says he's currently taking meds for E.T., never said he had any rigidity. huh?
Soccertese, why so negative?

Glen (the person in the radio interview) is sharing what works for him. In the beginning part of the interview he talks about the meds he was taking – Azilect, sinemet, ropinirole etc and how he was able to reduce them with dietary and other changes. He’s not selling anything and freely discusses his symptoms and how he found relief. He makes a good point that one also needs exercise, faith, fight and determination – waking each morning with inspiration to fight PD.

Some of his dietary and supplement suggestions are exactly what my neurologist is now recommending (blueberries, vit B12, turmeric, green tea etc.) – and I don’t want to be the one to tell her that’s just a bunch of “pseudo science” according to some!

Regarding nicotine gum – that’s the same question I had and here’s Glen’s response:

Nicotine gum by itself say chopped in ten pieces and blended in chewing gun works but when I tried that the effects were shorter in terms of "on" time than eggplant, green tomatoes or peppers. That's because these fruits have solanine and chaconine which inhibit acetylcholinesterase, and because eggplant has a powerful antioxidant and chelate called nasunin, read www.nasunin.com. And they have other good stuff.

Finally, check this one “Eating Foods With Nicotine Could Help Prevent Parkinson's Disease”
http://www.medicalnewstoday.com/articles/260354.php
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Old 03-14-2014, 12:18 PM #5
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of course i'm skeptical, not sure if negative is the correct word. i've been trying a lot of what he describes for years, even started eating peppers - yes, i saw the article about peppers - and i keep getting worse. and his pd drug regime just sounded strange, 1200mg C/L CR + comtan + azilect is a weird combo imho, that amount of CR is just too unpredictable and then you add COMTAN and then you add in azilect? hard to believe a MDS would prescribe that combination. plus he is still taking pd and ET drugs but doesn't mention the dosages? i was getting good symptom control on less than 300mg/day of C/L 5 years after diagnosis, so yes, i'd like to know what meds he is taking.
he included the web site of his business so he is getting attention for that.
i could go over his presentation point by point and give a counter-point to everything he is saying but it woudn't change anyone's opinion.


so are you going to start juicing eggplant? how much does a one day's eggplant cost vs smoking 1 cigarette?

he put some effort into that presentation, how hard would it have been to post some verification that he was diagnosed with pd by a MDS - just cross out the doctor name on his medical records, his pharmacy profile - any pharmacy will print out your profile, you just have to cross out the pharmacy and doctor names to protect them. i would never try to push some treatment that has very little scientific basis without offering proof that i had pd, why bother?
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Old 03-14-2014, 12:42 PM #6
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Default open-minded

One of the things I love about everyone here is how open-minded we are. We all realize that what works for one person may not work for another, and we also realize that we may not see things the same way, so we respect each other's opinion and their right to see things differently. Right?

I respect soccertease for stating his concerns, that takes guts as well as some time to analyze what this guy is saying (our first thought when I read his written narrative was that a 93% reduction in meds would be hard to quantify---how did he get that #? Why not 92% or 94%?). But he is an engineer, so perhaps he had ways to calculate his reduction to the stated 93%...but it would help if he shared how he got that number.

Personally, I'm thrilled he is feeling better, that is awesome for him. But.....I have to agree with soccertease...if we found ourselves greatly reducing meds and feeling way better, (yes, we have spent some time fantasizing about what we would do if PD were no longer the main feature of our lives)...we'd make a website sharing the story with before/after videos and before/after lists and amounts of meds/supplements taken, and then a detailed chronology of the recovery.

Given that the dx rate for PD is so erroneous and often flat-out WRONG (poor Harley I always think of you when erroneous PD dx comes up ), we would also include redacted copies of the medical charts/notes showing PD dx....not just from one doc, but all of the docs we've seen who have corroborated the dx. Most PWP get a second (and sometimes third, or, gasp, fourth opinion), and those would be included as well. Would also include the redacted notes showing progression and increased/added meds as the years had gone by.

Now maybe this guy hasn't gotten around to getting all of that stuff on his site yet....hopefully he'll put in on there. Being the engineer that he is, he will know the critical importance of objective/empirical validation. Let's wait and see when he puts more information out there, and then everyone can judge for him/her self.

Having said that, I personally think eating better can only help. While not a huge fan of eggplant (have I ever even bought one?), I guess I can try to get my family to muscle down a few bites of it to see if it helps
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Old 03-14-2014, 01:39 PM #7
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i will definitely start juicing eggplant/peppers/tomatoes by tomorrow morning !
Actually, i am quite excited about it .
so i will let you know if i see any positive (or negative ) or no changes .
for me, it does make sense, we have lots of neurons in the bowels , so putting some natural nicotine in the bowels sounds right .
I am already doing the Gerson therapy which involves lots of juices every day,so it would not be difficult .
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Old 03-14-2014, 03:37 PM #8
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Quote:
Originally Posted by villiers View Post
i will definitely start juicing eggplant/peppers/tomatoes by tomorrow morning !
Actually, i am quite excited about it .
so i will let you know if i see any positive (or negative ) or no changes .
for me, it does make sense, we have lots of neurons in the bowels , so putting some natural nicotine in the bowels sounds right .
I am already doing the Gerson therapy which involves lots of juices every day,so it would not be difficult .
Studies do seem to show that nicotene patches help much to reduce Parkinson's symptoms so eating eggplant seems like a good food to add to my diet. I tried some today and will try it for a few months. What is there to lose?

Eggplant is rich in antioxidant phytochemicals. In fact, the phenols, a class of phytochemicals eggplant contains, are among the most potent scavengers of highly reactive "free radicals" -- molecules that can promote cancer development or heart disease.

http://www.sheknows.com/food-and-rec...us-is-eggplant
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Old 03-14-2014, 04:42 PM #9
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If we look at each dietary change as a therebo [a potential therapy that could also be a placebo], it is not surprising that so many foods give good results, at least for a while.

The Huffington Post reports [1], based on [2] and [3], that 10kg of eggplant has the same amount of nicotine as 1 cigarette.

References:

[1] http://www.huffingtonpost.com/2012/0...n_1597087.html

[2] http://www.nejm.org/doi/full/10.1056...93fd3cd0100cee

[3] http://www.nejm.org/doi/full/10.1056...99311183292118

John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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Old 03-14-2014, 07:38 PM #10
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Default eggplant/nicotine

As much as I love eggplant I'm not sure I could sit down to 20 lbs in one serving . . . . Is it time to light up again? After 45 years, probably not. But oh those great French films of the '60's where everyone looked so cool with a Gauloise hanging off their lips. Sexier than trying to smoke an eggplant I guess . . . .
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